A qualitative study exploring the needs related to the health system in women with experience of pregnancy termination d
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(2020) 20:573
RESEARCH ARTICLE
Open Access
A qualitative study exploring the needs related to the health system in women with experience of pregnancy termination due to fetal anomalies in Iran Bahareh Kamranpour1, Mahnaz Noroozi2*
and Masoud Bahrami3
Abstract Background: In order to provide appropriate and adequate care to women who have experienced termination of pregnancy due to fetal anomalies, the health needs of this group should be assessed. Considering the lack of information about the care and services required by these women in Iran, this study was conducted with the aim of exploring the needs related to the health system in women with experience of pregnancy termination due to fetal anomalies. Methods: This study was conducted with a qualitative approach. 40 participants were selected through purposive sampling, and the data were collected through in-depth semi structured interviews and field notes, and analyzed using conventional qualitative content analysis. Results: After analyzing the texts, the needs related to the health system in women with experience of pregnancy termination due to fetal anomalies were categorized in the three main categories: “efficient treatment team”, “optimal organizational structure in providing services” and “financial support for families”. Conclusions: The findings of the present study by exploring and highlighting the needs related to the health system in different dimensions in women with experience of pregnancy termination due to fetal anomalies can be helpful for designing and providing basic and comprehensive care programs. Keywords: Health system, Pregnancy termination, Fetal anomaly, Qualitative study, Iran
Background Since birth of a healthy child is a part of feminine identity of a woman, pregnancy leading to fetal anomalies is a more destructive experience than any other type of loss [1]. Diagnosis of fetal anomalies is an unexpected event [2] and causes severe emotional, psychological and physical harm to women [3, 4]. Approximately 2–3% of pregnancies will be affected by congenital anomalies [5]. * Correspondence: [email protected] 2 Department of Midwifery and Reproductive Health, School of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran Full list of author information is available at the end of the article
According to studies, most pregnant women with fetal anomalies choose to terminate their pregnancies [6]. In Iran, the prevalence rate of congenital anomalies is 2.6% and almost one in three pregnancies prenatally diagnosed with birth defects is now legally terminated [7]. The active role of women in termination of the fetal life is a unique issue that distinguishes the subsequent grief process from the grief caused by abortion or intra uterine fetal death (IUFD) [8–10]. Also, this event can cause many challenges for parents in terms of continuing pregnancy without intervention or experimental fetal treatment in specific cases [11, 12]. The need to make quick
© The Author(s). 2020 Open Access This article is licensed
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