Adopting a collaborative approach in developing a prehabilitation program for patients with prostate cancer utilising ex
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ORIGINAL ARTICLE
Adopting a collaborative approach in developing a prehabilitation program for patients with prostate cancer utilising experience-based co-design methodology Clarice Y. Tang 1,2,3 & Monica Turczyniak 1 & Alesha Sayner 1 & Kimberley Haines 1 & Sally Butzkueven 4 & Helen E. O’Connell 5,6 Received: 13 September 2019 / Accepted: 2 February 2020 # Springer-Verlag GmbH Germany, part of Springer Nature 2020
Abstract Purpose Engaging patients in a prehabilitation program prior to commencement of cancer treatment is a known challenge. Utilising experience-based co-design (EBCD) methodology, this study aimed to explore the prostate cancer treatment journey from the perspectives of the patient and health professionals and collaboratively develop a prehabilitation program for patients with prostate cancer. Methods EBCD was utilised for this study. Patients, support persons and health professionals were selectively identified and recruited from two metropolitan health services in Melbourne. Selection criteria included (i) recent clinical/patient experience with prostate cancer treatment and (ii) willingness to share positive experiences and challenges in two 2-hour face-to-face workshops. Findings from these workshops were thematically analysed to identify key themes addressing aims of the study. Results Twenty participants including eight patients, one support person and 11 health professionals were recruited. Four key touchpoints were identified. All participants acknowledged positive interactions between patients and health professionals. Patients often described the journey as lonely, stressful and frustrating especially prior to commencement of treatment. A lack of a consistent approach in identifying and preparing patients with prostate cancer for treatment was identified. A structured prehabilitation program was proposed as a solution. Practical ideas to be implemented including timing of commencement, educational content and strategies to boost engagement were formulated. Conclusions The findings from the study provided practical guidance for future clinicians when implementing a prehabilitation program. Future study is required to evaluate the effectiveness of such a prehabilitation program in improving patient engagement and preparedness for prostate cancer treatment. Keywords Prehabilitation . Prostate cancer . Experience-based co-design
Introduction * Clarice Y. Tang [email protected] 1
Department of Physiotherapy, Western Health, Gordon Street, Footscray, VIC 3011, Australia
2
Department of Physiotherapy, Western Sydney University, Locked Bag 1797, Penrith, NSW 2751, Australia
3
School of Allied Health, La Trobe University, Melbourne, VIC 3086, Australia
4
Department of Cancer Services, Western Health, Furlong Road, St Albans, VIC 3011, Australia
5
Department of Surgery, University of Melbourne, Melbourne, Australia
6
Department of Urology, Western Health, St Albans, Australia
Cancer prehabilitation assists in optimising health outcomes and reducing post-surgical compl
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