Community-Led Monitoring: When Community Data Drives Implementation Strategies
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IMPLEMENTATION SCIENCE (E GENG, SECTION EDITOR)
Community-Led Monitoring: When Community Data Drives Implementation Strategies Solange Baptiste 1 & Alain Manouan 1 & Pedro Garcia 1 & Helen Etya’ale 1 & Tracy Swan 1 & Wame Jallow 1
# The Author(s) 2020
Abstract Purpose of Review Communities occupy a central position in effective health systems, notably through monitoring of health service quality and by giving recipients of care a voice. Our review identifies community-led monitoring mechanisms and best practices. Recent Findings Implementation of community-led monitoring mechanisms improved service delivery at facility-level, health system-wide infrastructure and health outcomes among recipients of care. Successful models were community-led, collaborative, continuous and systematic, and incorporated advocacy and community education. Summary Identifying and replicating successful community-led monitoring practices is a key pathway to equitable access to HIV and health services overall. Keywords Community-led monitoring . Social accountability . HIV . Improving health service delivery . Community data
Introduction Although the value and impact of their work are often underrecognized, communities have an important role in and are essential to building and overseeing strong healthcare systems, as originally noted in the 1978 Alma Ata Declaration [1, 2]. Indeed, communities have already been active in ensuring accessibility, availability, and acceptability of health This article is part of the Topical Collection on Implementation Science * Helen Etya’ale [email protected] Solange Baptiste [email protected] Alain Manouan [email protected] Pedro Garcia [email protected] Tracy Swan [email protected] Wame Jallow [email protected] 1
International Treatment Preparedness Coalition, Johannesburg, South Africa
services [1, 3]. Since the beginning of the HIV epidemic, community action has been instrumental in securing political will and funding for HIV research, prevention, care, and treatment services [4, 5]. The contribution that communities make by monitoring healthcare and holding healthcare providers (HCP) and governments accountable for meeting their needs is particularly critical in resource-limited settings with weak healthcare and monitoring systems [6]. However, the contribution of community-led monitoring is not yet adequately recognised or maximised. A common definition of “community” is groupings of people with shared interests, social interactions, behavioural norms, and/or geographical location [1, 7]. In this review, the term “community” refers specifically to intended endusers of health services, networks of people living with HIV (PLHIV), and civil society organisations working to promote rights-based access to care for key populations—those with the highest rates of and vulnerability to HIV, such as men who have sex with men (MSM,) sex workers, people who use drugs, and transgender persons. People who are members of these key populations are often excluded or discouraged from ac
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