Development and preliminary evaluation of the participation in life activities scale for children and adolescents with a

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Development and preliminary evaluation of the participation in life activities scale for children and adolescents with asthma: an instrument development study Eileen K Kintner Address: Michigan State University College of Nursing, East Lansing, MI, USA Email: Eileen K Kintner - [email protected]

Published: 28 May 2008 Health and Quality of Life Outcomes 2008, 6:37

doi:10.1186/1477-7525-6-37

Received: 27 June 2007 Accepted: 28 May 2008

This article is available from: http://www.hqlo.com/content/6/1/37 © 2008 Kintner; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract Background: Being able to do things other kids do is the desire of school-age children and adolescents with asthma. In a phenomenology study, adolescents identified participation in life activities as the outcome variable and primary motivator for behavioral changes in coming to accept asthma as a chronic condition. In preparation for testing an acceptance model for older school-age children and early adolescents diagnosed with asthma, the Participation in Life Activities Scale was developed. The purposes of this paper are to describe development, and report on face and content validity of the scale designed to measure one aspect of quality of life defined as level of unrestricted involvement in chosen pursuits. Methods: Items generated for the instrument evolved from statements and themes extracted from qualitative interviews. Face and content validity were evaluated by eight lay reviewers and 10 expert reviewers. Rate of accurate completion was computed using a convenience, cross-section sample consisting of 313 children and adolescents with asthma, ages 9–15 years, drawn from three studies. Preliminary cross-group comparisons of scores were assessed using t-tests and analysis of variance. Results: Face and content validity were determined to be highly acceptable and relevant, respectively. Completion rate across all three studies was 97%. Although cross-group comparisons revealed no significant differences in overall participation scores based on age, race or residence groupings (p > .05), significant difference were indicated between males and females (p = .02), as well as the highest and lowest socioeconomic groups (p = .002). Conclusion: Assessing content validity was the first step in evaluating properties of this newly developed instrument. Once face and content validity were established, psychometric evaluation related to internal consistency reliability and construct validity using factor analysis procedures was begun. Results will be reported elsewhere.

Background Asthma is the leading chronic condition of childhood and leading cause of disability in this group [1]. Nine million (7–17%) children in the United States less than age 18

years have been diagnosed w