Dysphagia in Children with EA-TEF From the Perspective of Pediatric Surgeons in Clinical Settings
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ORIGINAL ARTICLE
Dysphagia in Children with EA‑TEF From the Perspective of Pediatric Surgeons in Clinical Settings Selen Serel Arslan1 · Numan Demir1 · Aynur Ayşe Karaduman1 · Tutku Soyer2 Received: 6 January 2020 / Accepted: 24 August 2020 © Springer Science+Business Media, LLC, part of Springer Nature 2020
Abstract The current study was aimed to define clinical practice, knowledge and awareness, and best practice regarding dysphagia in children with esophageal atresia with/without tracheoesophageal fistula (EA-TEF) from the perspective of pediatric surgeons in Turkey. Pediatric surgeons practice EA repair were included. A survey related to clinical practice, knowledge and awareness, and best practice regarding dysphagia in EA-TEF was used. The survey was electronically sent to potential participants. Seventy-two pediatric surgeons with a mean professional experience of 14.73 ± 9.66 years (min = 1, max = 41) completed the survey. 19.4% (n = 14) had a standardized protocol for dysphagia screening and %51.4 (n = 37) provided swallowing rehabilitation to their patients. Most of the participants (80.6%) reported that they do not have an appropriate team approach for dysphagia management. The mean knowledge and awareness score was 11.04 ± 1.27 (min = 7, max = 12). The mean VAS score related to the need for standardized protocol in dysphagia management was 9.23 ± 1.44 (min = 3, max = 10). The mean VAS score related to the need for routine screening for dysphagia after surgery was 8.67 ± 2.17 (min = 1, max = 10). The mean score for the degree of the contribution of diagnosis and management of dysphagia to the surgical treatment in children operated for EA-TEF was 7.98 ± 2.08 (min = 3, max = 10). The participants mostly suggested the necessity of a standardized protocol in dysphagia and routine dysphagia screening in children with EA-TEF. Knowledge and awareness is found to be high among pediatric surgeons in Turkey. However, their clinical practice does not include a standardized protocol regarding dysphagia screening and management. Keywords Deglutition · Deglutition disorders · Esophageal atresia · Knowledge · Dysphagia management
Introduction Children with repaired esophageal atresia with/without tracheoesophageal fistula (EA-TEF) may experience respiratory, motility, digestive and nutritional problems [1–3]. Dysphagia is one of the main causes of respiratory and nutritional problems, and also may result in stressful interactions between children and their caregivers [4–6]. Therefore, awareness regarding dysphagia is essential to prevent dysphagia related complications and provide improvement in the quality of care in children with EA-TEF.
* Selen Serel Arslan [email protected] 1
Faculty of Physical Therapy and Rehabilitation, Hacettepe University, Altındağ, 06100 Ankara, Turkey
Department of Pediatric Surgery, Faculty of Medicine, Hacettepe University, Ankara, Turkey
2
Multidisciplinary care is important in the management of children with EA-TEF [7]. After initial surgical procedures and i
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