Empowering Parents to Become Informed Advocates and Decision-Makers

Advocacy is an important part of the lives of many parents of children with ASD. Historically, parent advocacy has played a significant role in shaping education policies and practices for children with disabilities, including those with ASD. In order to

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owering Parents of Children with Autism Spectrum Disorder Critical Decision-making for Quality Outcomes

Empowering Parents of Children with Autism Spectrum Disorder

Amanda Webster • Joy Cumming Susannah Rowland

Empowering Parents of Children with Autism Spectrum Disorder Critical Decision-making for Quality Outcomes

Amanda Webster School of Education, Faculty of Social Sciences University of Wollongong Wollongong, NSW, Australia

Joy Cumming Learning Sciences Institute Australian Catholic University Brisbane, Queensland, Australia

Susannah Rowland Coorparoo, Queensland, Australia

Comic illustrations by India Webster ISBN 978-981-10-2082-7 ISBN 978-981-10-2084-1 DOI 10.1007/978-981-10-2084-1

(eBook)

Library of Congress Control Number: 2016950194 © Springer Science+Business Media Singapore 2017 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. Printed on acid-free paper This Springer imprint is published by Springer Nature The registered company is Springer Nature Singapore Pte Ltd. The registered company address is: 152 Beach Road, #22-06/08 Gateway East, Singapore 189721, Singapore

Foreword

I have had the great fortune to meet many children and adults on the autism spectrum and their family members throughout my career. They have taught me a great deal about what it means to live with autism and about the role professionals have played in their lives. I have learned that, for many families, interacting with professionals can help or hinder, decrease or increase stress, empower or disempower, cause or resolve conflict, create or solve problems. From a professional perspective, we would do well to be guided by the work of Carl Dunst, the Turnbulls and others who have advocated for decades that family empowerment should be a primary outcome of intervention. Over the past two decades, we have amassed a large body of research supporting the use by professionals of family-centred practices that empower families. The use of a familycentred approach has been linked to impr