Ethical Issues in Pediatric Hematology/Oncology
This book identifies the various ethical challenges that arise in pediatric hematology/oncology and provides the necessary tools to overcome these challenges. Aiming to expand upon and strengthen providers’ knowledge and experience in pediatric health car
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Ethical Issues in Pediatric Hematology/Oncology
Kate A. Mazur • Stacey L. Berg Editors
Ethical Issues in Pediatric Hematology/Oncology
Editors Kate A. Mazur, MSN, RN, CPNP Texas Children’s Cancer and Hematology Centers, Baylor College of Medicine Texas Children’s Hospital Houston, TX USA
Stacey L. Berg, MD Texas Children’s Cancer and Hematology Centers, Baylor College of Medicine Texas Children’s Hospital Houston, TX USA
ISBN 978-3-030-22683-1 ISBN 978-3-030-22684-8 (eBook) https://doi.org/10.1007/978-3-030-22684-8 © Springer Nature Switzerland AG 2020 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors, and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, expressed or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. This Springer imprint is published by the registered company Springer Nature Switzerland AG The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland
Preface
Pediatric hematology and oncology is plagued with ethical dilemmas from the time of diagnosis through end-of-life care. Although adult and pediatric hematology/ oncology share the same core ethical principles of respect, beneficence, nonmaleficence, and justice, pediatrics contains its own unique challenges. Our goals in presenting this book are to provide a uniquely targeted overview of the principles of ethical pediatric decision-making, the unique difficulties in enrolling children as research subjects, the common ethical conundrums involved in providing end-oflife care, and the general moralities of pediatric hematology/oncology practice. Pediatric hematologists and oncologists must understand these issues and face these challenges in order to provide ethically sound clinical care. Children’s decision-making capacity evolves along a developmental continuum, while minors are not able to provide legally effective informed consent. Thus, in a model of shared decision-making, the physician provides information to the caregiver and the child, the caregiver provides permi
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