Ethics, Law and Governance of Biobanking National, European and Inte
Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pha
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Deborah Mascalzoni Editor
Ethics, Law and Governance of Biobanking National, European and International Approaches
Ethics, Law and Governance of Biobanking
The International Library of Ethics, Law and Technology VOLUME 14
Editors Anthony Mark Cutter, Lancashire, UK Bert Gordijn, Ethics Institute, Dublin City University, Ireland Gary E. Marchant, Center for the Study of Law, Science, and Technology, Arizona State University, USA Colleen Murphy, University of Illinois at Urbana-Champaign, Urbana, IL, USA Alain Pompidou, European Patent Office, Munich, Germany Sabine Roeser, Dept. Philosophy, Delft University of Technology, Delft, The Netherlands
Editorial Board Dieter Birnbacher, Institute of Philosophy, Heinrich-Heine-Universität, Germany Roger Brownsword, King’s College London, UK Ruth Chadwick, ESRC Centre for Economic & Social Aspects of Genomics, Cardiff, UK Paul Stephen Dempsey, Institute of Air & Space Law, Université de Montréal, Canada Michael Froomkin, University of Miami Law School, FL, USA Serge Gutwirth, Vrije Universiteit, Brussels, Belgium Henk ten Have, Duquesne University, Pittsburgh, USA Søren Holm, University of Manchester, UK George Khushf, Center for Bioethics, University of South Carolina, USA Justice Michael Kirby, High Court of Australia, Canberra, Australia Bartha Maria Knoppers, Université de Montréal, Canada David Krieger, The Waging Peace Foundation, CA, USA Graeme Laurie, AHRC Centre for Intellectual Property and Technology Law, UK René Oosterlinck, European Space Agency, Paris Edmund Pellegrino, Kennedy Institute of Ethics, Georgetown University, USA John Weckert, School of Information Studies, Charles Sturt University, Australia
More information about this series at http://www.springer.com/series/7761
Deborah Mascalzoni Editor
Ethics, Law and Governance of Biobanking National, European and International Approaches
13
Editor Deborah Mascalzoni Centre for Biomedicine European Academy Bolzano Bolzano Italy
ISSN 1875-0044 ISSN 1875-0036 (electronic) The International Library of Ethics, Law and Technology ISBN 978-94-017-9572-2 ISBN 978-94-017-9573-9 (eBook) DOI 10.1007/978-94-017-9573-9 Library of Congress Control Number: 2014959850 Springer Dordrecht Heidelberg New York London © Springer Science+Business Media Dordrecht 2015 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher,
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