Handbook of Genomics and the Family Psychosocial Context for Childre
Today’s consumer can send a company a DNA sample and receive a detailed set of genetic test results in return all without ever visiting a health care provider. Although knowing one’s personal risk for serious disease may lead some individuals to make more
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I SSUE S
IN
C LI NI C A L C HI LD P SYC HO LO G Y
Kenneth P. Tercyak Editor
Handbook of Genomics and the Family Psychosocial Context for Children and Adolescents
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Issues in Clinical Child Psychology Series Editor: Michael C. Roberts, University of Kansas—Lawrence, Kansas
For further volumes: http://www.springer.com/series/6082
Handbook of
Genomics and the Family Psychosocial Context for Children and Adolescents Edited by
Kenneth P. Tercyak Georgetown University, Washington DC, USA
123
Editor Kenneth P. Tercyak Department of Oncology Division of Health Outcomes & Health Behaviors Georgetown University 3300 Whitehaven Street, NW Washington, DC 20007
ISSN 1574-0471 ISBN 978-1-4419-5799-3 e-ISBN 978-1-4419-5800-6 DOI 10.1007/978-1-4419-5800-6 Springer New York Dordrecht Heidelberg London Library of Congress Control Number: 2010926969 © Springer Science+Business Media, LLC 2010 All rights reserved. This work may not be translated or copied in whole or in part without the written permission of the publisher (Springer Science+Business Media, LLC, 233 Spring Street, New York, NY 10013, USA), except for brief excerpts in connection with reviews or scholarly analysis. Use in connection with any form of information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed is forbidden. The use in this publication of trade names, trademarks, service marks, and similar terms, even if they are not identified as such, is not to be taken as an expression of opinion as to whether or not they are subject to proprietary rights. While the advice and information in this book are believed to be true and accurate at the date of going to press, neither the authors nor the editors nor the publisher can accept any legal responsibility for any errors or omissions that may be made. The publisher makes no warranty, express or implied, with respect to the material contained herein. Printed on acid-free paper Springer is part of Springer Science+Business Media (www.springer.com)
To my wife, Randi, and our children, Sam, Anna, and Ryan, for their support and good humor always.
Preface Today, individuals have greater access to information about their health than ever before (Randeree, 2009; Eysenbach, 2008). Much of this change is due, in large part, to advances in biotechnology and the sequencing of the human genome (Manolio & Collins, 2009). It is now possible, for example, for individuals to log onto the Internet and, for a fee of several hundred dollars, order an at-home DNA collection kit and have the results of a myriad of genetic tests delivered directly to their e-mail inbox (Gurwitz & Bregman-Eschet, 2009). In some cases, these test results may indicate personal risk for common chronic diseases, such as certain forms of cancer, diabetes, cardiovascular disease, and several others. Companies marketing these test kits often claim that promoting greater access to and awareness of the association between genes and health, and one’s genetic
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