Health-related quality of life improvement via telemedicine for epilepsy: printed versus SMS-based education interventio
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Health-related quality of life improvement via telemedicine for epilepsy: printed versus SMS-based education intervention Pei Lin Lua • Widiasmoro Selamat Neni
Accepted: 10 January 2013 Ó Springer Science+Business Media Dordrecht 2013
Abstract Background Improving health-related quality of life (HRQoL) among people with epilepsy (PWE) has become the focus of various treatment programmes and behavioural interventions which continue to be challenging to both patients and healthcare professionals. Aims and objectives To investigate the impact of SMSbased epilepsy education programme on PWE’s HRQoL status and to determine the predictors for good HRQoL. Methods Eligible epilepsy out-patients from three public hospitals in East Coast Peninsular Malaysia were randomized into two groups: intervention (IG) and control (CG). Patients in the CG were supplied with only printed epilepsy educational module, while those in the IG additionally received short message service (SMS) from the Mobile Epilepsy Educational System (MEES). The Malay Quality of Life in Epilepsy Inventory-30 (MQOLIE-30) was utilized for HRQoL assessment. Descriptive statistics, paired t test, analysis of covariance and multiple logistic regression were employed for data analyses (SPSS 16). Results One hundred and forty-four PWE were recruited for the study (age = 30.5 ± 11.8; unmarried = 60.4 %; education level B SPM/Cambridge O’ level = 76.4 %; illness duration [ 5 years = 51.1 %). After controlling for possible confounders, IG exhibited positive changes in HRQoL profile compared to CG particularly in Seizure Worry, Overall Quality of Life, Emotional Well-Being, Social Functioning and Overall Score (p \ 0.05). After
P. L. Lua (&) W. S. Neni Centre for Clinical and Quality of Life Studies (CCQoLS) Faculty of Medicine and Health Sciences, Universiti Sultan Zainal Abidin (UniSZA), Kampus Kota, Jalan Sultan Mahmud, 20400 Kuala Terengganu, Malaysia e-mail: [email protected]
adjusting for covariates, being employed and receiving additional SMS-based epilepsy education programme emerged as the significant predictors of good HRQoL among PWE. Conclusion Receiving continuous SMS-based epilepsy information from the MEES seemed to generate positive impacts on PWE’s overall HRQoL. This study has provided a basis for future innovations to inspire efforts in ensuring the welfare and HRQoL of PWE and their families. Keywords Epilepsy Health-related quality of life (HRQoL) Educational programme Short message service (SMS) Telemedicine
Introduction Health-related quality of life (HRQoL) has been a major concept in epilepsy care in recent years [1]. Previous studies have reported that well-constructed psychosocial treatments possessed the potential to improve the lives of both patients and their families [2–5]. Behavioural intervention especially educational programmes play a key role in increasing knowledge about epilepsy as a treatable brain disorder and in reducing and preventing social exclusion of patient with epilepsy [6] which could eventually lead
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