Healthcare and Big Data Digital Specters and Phantom Objects
This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold
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HEALTHCARE AND BIG DATA Digital Specters and Phantom Objects
Healthcare and Big Data
Mary F.E. Ebeling
Healthcare and Big Data Digital Specters and Phantom Objects
Mary F.E. Ebeling Drexel University Philadelphia, Pennsylvania, USA
ISBN 978-1-137-50220-9 ISBN 978-1-137-50221-6 DOI 10.1057/978-1-137-50221-6
(eBook)
Library of Congress Control Number: 2016947279 © The Editor(s) (if applicable) and The Author(s) 2016 This work is subject to copyright. All rights are solely and exclusively licensed by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. Cover image © Design Pics Inc / Alamy Stock Photo Printed on acid-free paper This Palgrave Macmillan imprint is published by Springer Nature The registered company is Nature America Inc. New York
For the generations connected through me that have already gone and that are yet to be. But especially for Savannah (Mashashe) and Tim.
ACKNOWLEDGMENTS
It was only through a series of what I call “alignments and coincidences” that this book came to be. In many ways, it demanded to exist. But this existential demand does not lessen the struggle that it took to bring it into material form or the deep appreciation that I feel toward all those who generously contributed to make this book a reality. A series of alignments occurred in the spring of 2014 that made this all happen, including a residency that I participated in at the Department of Sociology at the University of Surrey (UK). Here, through the graciousness of people like Sara Arber and Nigel Gilbert, and especially Paul Hodkinson, who was my mentor, I developed the seed of this book in a scholarly environment rich in compassion, inspiration, and stimulating conversations. My gratitude extends to Geoff Cooper, Nicola Green, Susan Venn, Christine Hine, Mahamani Cronin, Agnes McGill, Ozge Dilaver Kalkan, and Rob Meadows. It was the bravery of others at Surrey who, in private conversations, shared their own stories of trauma around pregnancy loss and stillbirth that emboldened me to write this book. In their courage to express their pai
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