HOme-based Longitudinal Investigation of the multidiSciplinary Team Integrated Care (HOLISTIC): protocol of a prospectiv
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HOme-based Longitudinal Investigation of the multidiSciplinary Team Integrated Care (HOLISTIC): protocol of a prospective nationwide cohort study Jung-Yu Liao1, Ping-Jen Chen2,3,4*† , Yu-Lin Wu5, Ching-Hsia Cheng6, Sang-Ju Yu7, Chi-Hsien Huang8,9,10, Chia-Ming Li11, Ying-Wei Wang12, Kai-Ping Zhang13, I-Te Liu14, Hiroyuki Umegaki8, Jun Hamano15, Masanori Mori16, Irene Petersen17, Elizabeth L. Sampson4,18 and Chao A. Hsiung1†
Abstract Background: The use of home health care (HHC) is increasing worldwide. This may have an impact not only on patients and their caregivers’ health but on care resource utilization and costs. We lack information on the impact of HHC on the broader dimensions of health status and care resource utilization. More understanding of the longitudinal HHC impact on HHC patients and caregivers is also needed. Moreover, we know little about the synergy between HHC and social care. Therefore, the present study aims to observe longitudinal changes in health, care resource utilization and costs and caregiving burden among HHC recipients and their caregivers in Taiwan. Methods: A prospective cohort study “Home-based Longitudinal Investigation of the Multidisciplinary Team Integrated Care (HOLISTIC)” will be conducted and 600 eligible patient-caregiver dyads will be recruited and followed with comprehensive quantitative assessments during six home investigations over two years. The measurements include physical function, psychological health, cognitive function, wellbeing, shared decision making and advance care planning, palliative care and quality of dying, caregiving burden, continuity and coordination of care, care resource utilization, and costs. Discussion: The HOLISTIC study offers the opportunity to comprehensively understand longitudinal changes in health conditions, care resource utilization and costs and caregiving burden among HHC patients and caregivers. It will provide new insights for clinical practitioners and policymakers. Trial registration: ClinicalTrials.gov Identifier is NCT04250103 which has been registered on 31st January 2020. Keywords: Home health care (HHC), Cohort study, Health status, Geriatric assessment, Caregiving burden, Longterm care
* Correspondence: [email protected] † Ping-Jen Chen and Chao A. Hsiung contributed equally to this work. 2 Department of Family Medicine, Kaohsiung Medical University Hospital, Kaohsiung Medical University, Kaohsiung City 807, Taiwan 3 School of Medicine, College of Medicine, Kaohsiung Medical University, Kaohsiung City 807, Taiwan Full list of author information is available at the end of the article © The Author(s). 2020 Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party
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