Linking of the quality of life in neurological disorders (Neuro-QoL) to the international classification of functioning,
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Linking of the quality of life in neurological disorders (NeuroQoL) to the international classification of functioning, disability and health Alex W. K. Wong1 • Stephen C. L. Lau2 • David Cella3 • Jin-Shei Lai4 • Guanli Xie5 • Lidian Chen5 • Chetwyn C. H. Chan6 • Allen W. Heinemann7
Accepted: 3 May 2017 Ó Springer International Publishing Switzerland 2017
Abstract Background The quality of life in neurological disorders (Neuro-QoL) is a U.S. National Institutes of Health initiative that produced a set of self-report measures of physical, mental, and social health experienced by adults or children who have a neurological condition or disorder. Objective To describe the content of the Neuro-QoL at the item level using the World Health Organization’s international classification of functioning, disability and health (ICF).
Electronic supplementary material The online version of this article (doi:10.1007/s11136-017-1590-9) contains supplementary material, which is available to authorized users. & Alex W. K. Wong [email protected] Stephen C. L. Lau [email protected] David Cella [email protected]
Methods We assessed the Neuro-QoL for its content coverage of functioning and disability relative to each of the four ICF domains (i.e., body functions, body structures, activities and participation, and environment). We used second-level ICF three-digit codes to classify items into categories within each ICF domain and computed the percentage of categories within each ICF domain that were represented in the Neuro-QoL items. Results All items of Neuro-QoL could be mapped to the ICF categories at the second-level classification codes. The activities and participation domain and the mental functions category of the body functions domain were the areas most often represented by Neuro-QoL. Neuro-QoL
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Program in Occupational Therapy, Washington University School of Medicine, St. Louis, MO, USA
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Department of Medical Social Science & Center for PatientCentered Outcomes, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
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Departments of Medical Social Science & Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
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College of Rehabilitation Medicine, Fujian University of Traditional Chinese Medicine, Fuzhou, Fujian, China
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Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Hong Kong SAR, China
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Department of Physical Medicine and Rehabilitation, Northwestern University Feinberg School of Medicine & Center for Rehabilitation Outcomes Research, Rehabilitation Institute of Chicago, Chicago, IL, USA
Jin-Shei Lai [email protected] Guanli Xie [email protected] Lidian Chen [email protected] Chetwyn C. H. Chan [email protected] Allen W. Heinemann [email protected] 1
Program in Occupational Therapy & Department of Neurology, Washington University School of Medicine, 4444 Forest Park Ave, Campus Box 8505, St. Louis, MO 63108, USA
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Qual Life Res
provides limited coverage of the environmental factors and b
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