Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention
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Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention Miriam Douma1 · Charlotte P. Bouman1 · Hedy A. van Oers1 · Heleen Maurice‑Stam1 · Lotte Haverman1 · Martha A. Grootenhuis1,2 · Linde Scholten1
© The Author(s) 2020
Abstract Objectives Parents of children with a chronic illness (CI) are at risk for psychosocial problems. The aim of this study was to refine an existing face-to-face intervention into an online psychosocial group intervention for parents by (1) exploring which themes are important, (2) determine what type of intervention parents would like and (3) assess parents’ practical preferences. Methods Parents of children with a CI (0–18 years) were invited to complete an online questionnaire. To acquire more indepth information, focus groups and telephone interviews were conducted. Descriptive statistics were used. Results 272 parents (mean age = 43.1 years, 85% female) participated. Three focus groups (15 parents) and seven telephone interviews were conducted. Most important themes were: the CI of the child, family functioning, taking care of yourself, relationships with others and practical support. Parents preferred a group with parents of children in the same age category. At first, parents preferred face-to-face contact. After an explanation and demonstration of an online intervention, parents became more positive about online support, mostly because they could participate from home. Conclusions for Practice Parents have a need for psychosocial support focusing on different themes. Professionals should explain and demonstrate an online intervention to parents. Based on these results, Op Koers Online for parents was developed. An RCT to assess feasibility and effectiveness of the intervention is currently running. Keyword Parents of children with a chronic illness · Psychosocial problems · Parental psychosocial support needs · Intervention development · Online psychosocial cognitive-behavioral group intervention * Miriam Douma [email protected]
Significance
Charlotte P. Bouman [email protected]
What is already known on this subject?: Parents of children with a chronic illness are at risk for developing psychosocial problems. What this study adds?: Based on parental support needs and the themes parents considered as important to address in an intervention, an innovative parent-focused intervention Op Koers Online for parents was developed. It is an important contribution to the field, because the focus is on parents themselves, as opposed to existing parental interventions that focus on teaching parents how to support their children. Furthermore, because the intervention has a generic approach, parents of children with rare illnesses have the opportunity to participate in a group intervention.
Hedy A. van Oers [email protected] Heleen Maurice‑Stam h.maurice‑[email protected] Lotte Haverman [email protected] Martha A. Grootenhuis m.a.grootenhuis‑[email protected] Linde Scholten linde.scholten@amsterd
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