Osteoporosis and Related Diseases: Voluntary Organizations
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Drug Infomrion J o u m l . Vol. 32. pp. 991-996. 1998
Copyright 0 1998 Drug Informalion Association Inc.
Printed in ihe USA. All rights reserved.
OSTEOPOROSIS AND RELATED DISEASES: VOLUNTARY ORGANIZATIONS THERESA D. GALSWORTHY, RN,ONC Director, Osteoporosis Prevention Center, Hospital for Special Surgery, New York. New York
This paper highlights the work of four nonprofit, volunteer osteoporosis educational foundations: the United States National Osteoporosis Foundation, the Paget Foundation for Paget’s Disease of Bone and Related Disorders, the European Foundationfor Osteoporosis and Bone Disease, and the Osteoporosis Society of Canada. All facilitate education across the patient, medical, scientific, general public, and political communities, in order to promote behavioral change in all aspects of disease prevention and management. Key Words: Osteoporosis; Education; Voluntary organizations
INTRODUCTION
directors of each organization: Sandra C. Raymond, National Osteoporosis FoundaTHE UNITED STATES National Osteopo- tion in Washington, D.C.; Charlene Waldrosis Foundation, the Paget Foundation for man, Paget Foundation for Paget’s Disease Paget Disease of Bone and Related Disor- of Bone and Related Disorders in New York ders, the European Foundation for Osteopo- City; Mary Fraser, European Foundation for rosis and Bone Disease, and the Osteoporosis Osteoporosis and Bone Diseases in Lyon, Society of Canada have continued to strive to France; and Joyce Gordon, Osteoporosis Soincrease awareness of osteoporosis, provide ciety of Canada in Toronto, Ontario, Canada, multilevel educational programs and materi- are recapped here. als, support research, and influence legislaEach foundation has a unique history. Detion. The pioneering and dedicated leaders pendent upon the geographic, cultural, and of these organizationspresented their accom- political climate, they were established plishments as panelists during “Osteoporosis through different developmental pathways. It and Related Diseases: Voluntary Organiza- is profoundly significant, however, that detions,” at the DIA 2nd Annual Symposium spite the differences in the forces that gener“Osteoporosis Education: Focusing on Be- ated their development, these nonprofit. volhavioral Change,” held in April 1997 in Phil- unteer organizations share a broad theme in adelphia. The presentations of the executive their mission statements. All embrace visible action to execute change. All facilitate education across the patient, medical, scientific, Presented at the DIA 2nd Annual Symposium “Osteo- general public, and political communities, in porosis Education: Focusing on Behavioral Change,” order to promote behavioral change in all April 14-1 5. 1997. Philadelphia, Pennsylvania. aspects of disease prevention and manReprint address: Theresa D. Galswonhy. RN. ONC. agement. Director, Osteoporosis Prevention Center, Hospital for Increasing awareness about osteoporosis Special Surgery, 535 E. 70th Street, New York. NY is particularly critical at this time. Osteoporo10021. 991 Dow
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