Patient-Oriented Research from the ISDM 2019 Conference: A Legacy Now More Relevant Than Ever
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COMMENTARY
Patient‑Oriented Research from the ISDM 2019 Conference: A Legacy Now More Relevant Than Ever Patrick M. Archambault1,2,3,4 · Sabrina Guay‑Bélanger2,5,6 · Véronique Gélinas2,3,4 · Anik Giguère1,2,5 · Claire Ludwig7 · Mame Awa Ndiaye8 · Kathy Kastner9 · Dawn Stacey10,11 · Nick Bansback12 · Gary Groot13 · France Légaré1,2,5,6 Accepted: 19 September 2020 © Springer Nature Switzerland AG 2020
In July 2019, Canada hosted the 10th International Shared Decision Making (ISDM) conference in Quebec City on campus at Université Laval. This biannual conference brought together 429 delegates from 22 countries to share their work about patient-oriented shared decision making (SDM) research. Patient-oriented research refers to a continuum of research that engages patients as partners, focusses on patient-identified priorities and improves patient outcomes [1]. SDM involves health professionals and patients making decisions together based on the best available evidence, health professionals’ experience and patients’ values and preferences [2]. Patient-oriented research is thus an optimal framework to conduct research about SDM. Multiple milestones occurred during the ISDM 2019 conference, including (i) it was the first ever Patients Included ISDM conference; (ii) it was led by a consortium of scientists representing four universities (Université Laval, University of Ottawa, University of Saskatchewan and University of British Columbia) and co-chaired by patient partners; (iii) its central office was supported by staff at the Canada Research Chair in Shared Decision Making and Knowledge
Translation [3]; (iv) it was the official launch of the ISDM Society [4] and (v) it was the first time that a special issue of The Patient—Patient Centered Outcomes Research journal reported on notable research presented during this conference. As well, the five leaders who initiated this research community were reunited and honoured at the 2019 conference: Angela Coulter, Annette O’Connor, Hilary LlewellynThomas, Margaret Holmes-Rovner and David Rovner. During three science-packed days, new knowledge was shared, new relationships were created, lasting relationships were reinforced, and inspiring presentations were given by a mix of diverse stakeholders such as patient partners, researchers and decision makers. All in the name of science and the spirit of patient-oriented research, this conference brought together people, citizens and leaders in SDM to share a common vision about how science could be produced and disseminated differently with significant guidance from patient partners. There were 10 pre-conference workshops, 12 meetings of special interest groups, 178 oral presentations and 202 poster presentations. This conference energized many of its attendees to pursue
* Patrick M. Archambault [email protected]; [email protected]
6
Canada Research Chair in Shared Decision Making and Knowledge Translation, Université Laval, Québec, QC, Canada
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Patient Partner, Ottawa, ON, Canada
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Pat
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