Patient Reported Outcome Measures in Rheumatic Diseases
This book discusses the role of patient reported outcome measures (PROMs) in the diagnosis and management of rheumatic diseases and their implementation in patient-centered care. It aims to improve the quality and efficiency of patient care in standard pr
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Yasser El Miedany Editor
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Patient Reported Outcome Measures in Rheumatic Diseases
Yasser El Miedany Editor
Patient Reported Outcome Measures in Rheumatic Diseases
Editor Yasser El Miedany, MD, FRCP Honorary Senior Clinical Lecturer King’s College London London, UK Professor of Rheumatology and Rehabilitation Ain Shams University Cairo, Egypt Department of Rheumatology Darent Valley Hospital Dartford, Kent, UK
ISBN 978-3-319-32849-2 ISBN 978-3-319-32851-5 DOI 10.1007/978-3-319-32851-5
(eBook)
Library of Congress Control Number: 2016944141 © Springer International Publishing Switzerland 2016 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. Printed on acid-free paper This Springer imprint is published by Springer Nature The registered company is Springer International Publishing AG Switzerland
Preface
The recently introduced patient-centered approach mandated a shift of the rheumatologist’s understanding toward placing the inflammatory arthritic conditions themselves, their associated comorbidities, and the possible interactions at equal distance. Patient-reported outcomes (PROs) are defined as measures of a patient’s health status or health-related quality of life reported directly by the patient, whereas patientreported outcome measures (PROMs) are the tools used to measure the patient-reported outcomes. PROs represent “the patient’s voice” in both standard clinical practice and clinical trials. PROMs not only provide clinicians with timely information on the patient’s symptoms as well as functional and emotional status, but it also enhances the patient-clinician communication and facilitates the recently introduced concept of patient activation-physician activation. In parallel with the patient-reported outcomes, this book also presents the newly developed Physician RheuMetric measures, designed to enable the treating clinician to record the patient’s disease activity and impact from the physician’s own perspective. Integrating patient-reported outcome measures in
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