Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey
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ORIGINAL ARTICLE – CLINICAL ONCOLOGY
Patterns of care and follow‑up care of patients with uveal melanoma in German‑speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG) Theresa Steeb1,2 · Anja Wessely1,2 · Mareike Alter3 · Christiane Bayerl4 · Armin Bender5 · Guido Bruning6 · Evelyn Dabrowski7 · Dirk Debus8 · Nina Devereux6 · Edgar Dippel7 · Konstantin Drexler9 · Pia Dücker10 · Reinhard Dummer11 · Steffen Emmert12 · Peter Elsner13 · Alexander Enk14 · Christoffer Gebhardt15 · Anja Gesierich16 · Matthias Goebeler16 · Sergij Goerdt17 · Steven Goetze13 · Ralf Gutzmer18 · Sebastian Haferkamp9 · Gesina Hansel19 · Jessica C. Hassel14 · Lucie Heinzerling1,2,46 · Katharina C. Kähler20 · Kjell M. Kaume21 · Wolfgang Krapf22 · Nicole Kreuzberg23 · Percy Lehmann24 · Elisabeth Livingstone25 · Harald Löffler22 · Carmen Loquai26 · Cornelia Mauch23 · Johanna Mangana11 · Friedegund Meier27 · Markus Meissner28 · Rose K. C. Moritz29 · Lara Valeska Maul30 · Verena Müller17 · Peter Mohr31 · Alexander Navarini30 · Ahn Van Nguyen32 · Christiane Pfeiffer33,34 · Claudia Pföhler35 · Christian Posch36 · Erika Richtig37 · Rainer Rompel38 · Michael M. Sachse39 · Stefanie Sauder38 · Dirk Schadendorf25 · Kerstin Schatton40 · Hans‑Joachim Schulze41 · Erwin Schultz8 · Bastian Schilling16 · Matthias Schmuth32 · Jan. C. Simon42 · Markus Streit43 · Patrick Terheyden44 · Alexander Thiem12 · Thomas Tüting3 · Julia Welzel33 · Gerhard Weyandt45 · Ulrich Wesselmann24 · Uwe Wollina19 · Mirjana Ziemer42 · Lisa Zimmer25 · Markus Zutt21 · Carola Berking1,2 · Max Schlaak46 · Markus V. Heppt1,2 on behalf of the German Dermatologic Cooperative Oncology Group (DeCOG, committee ocular melanoma) Received: 7 October 2020 / Accepted: 31 October 2020 © The Author(s) 2020
Abstract Purpose Uveal melanoma (UM) is an orphan cancer of high unmet medical need. Current patterns of care and surveillance remain unclear as they are situated in an interdisciplinary setting. Methods A questionnaire addressing the patterns of care and surveillance in the management of patients with uveal melanoma was distributed to 70 skin cancer centers in Austria, Germany and Switzerland. Frequency distributions of responses for each item of the questionnaire were calculated. Results 44 of 70 (62.9%) skin cancer centers completed the questionnaire. Thirty-nine hospitals were located in Germany (88.6%), three in Switzerland (6.8%) and two in Austria (4.5%). The majority (68.2%) represented university hospitals. Most patients with metastatic disease were treated in certified skin cancer centers (70.7%, 29/41). Besides, the majority of patients with UM were referred to the respective skin cancer center by ophthalmologists (87.2%, 34/39). Treatment and organization of follow-up of patients varied across the different centers. 35.1% (14/37) of the centers stated to not perform any screening measures. Conclusion Treatment patterns of patients with uveal melanoma in Germany, Austria and Switzerland remain extremely heterogeneous. A guideline for t
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