Quality of Life Measures in Children with Cancer
Health related quality of life (HRQL) in pediatric oncology patients has gained much attention in the past three decades due to the advances in medical technology which has dramatically increased survival rates. The purpose of this review is to identify,
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Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2470
2 2.1 2.2 2.3
The Criteria for Selection . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2471 Conceptual Definitions of HRQL . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2471 Disease Specific and Generic Instruments to Measure HRQL . . . . . . . . . . . . . . . . . . . . . 2474 Respondent . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2477
3 3.1 3.2 3.3
Discussion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2477 Problems with the Conceptual Definition of HRQL . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2477 Proxy Agreement . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2478 Developmental Concerns of HRQL . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2479
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Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2479 Summary Points . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2480
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Springer Science+Business Media LLC 2010 (USA)
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Quality of Life Measures in Children with Cancer
Abstract: Health related quality of life (HRQL) in pediatric oncology patients has gained much attention in the past three decades due to the advances in medical technology which has dramatically increased survival rates. The purpose of this review is to identify, describe and critique HRQL measures developed or applied in pediatric oncology patients. Considerable progress has been made in the development of HRQL for pediatric oncology patients in the past two decades. Measures reviewed in this chapter have been examined for many factors: multidimensional constructs, patient’s subjective assessment, as well as supplemental information provided by parents or healthcare providers. Evidence of strong psychometric qualities has also been provided for the studies reviewed here. Still, there are problems regarding HRQL measures for pediatric oncology patients which need to be solved, including additional consensus of conceptual and operation definitions of HRQL. Issues related to concordances of proxy agreement remain. Few HRQL measures have taken developmental issues into account, especially for younger children. Interpretation of quantitative HRQL may ignore the qualitative meaning to children’s perception of HRQL. List of Abbreviations: ARM, adolescent resilience model; CHI, child health and illness; C
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