Recommendations of patients and families of girls with 46XX congenital adrenal hyperplasia in the United Kingdom regardi
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ORIGINAL ARTICLE
Recommendations of patients and families of girls with 46XX congenital adrenal hyperplasia in the United Kingdom regarding the timing of surgery Mohamed Shalaby1 · Harish Chandran2 · Sue Elford3 · Jeremy Kirk4 · Liam McCarthy2 Accepted: 9 November 2020 © Springer-Verlag GmbH Germany, part of Springer Nature 2020
Abstract Purpose The timing of surgery for congenital adrenal hyperplasia (CAH) is contentious. We aimed to survey expert families and patients for their recommendations regarding timing of surgery for a family with a newly diagnosed CAH child. Methods A Survey Monkey questionnaire was performed at the 2017 meeting of the CAH support group, “Living with CAH”, and also sent to the members of the CAH support group. The surgical-timing responses were a Likert score from 1 (strongly disagree) to 5 (strongly agree). Data were analysed by Kruskal–Wallis test. p
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