Redefining Social Lives

Caring for grandchildren with disabilities often reshapes social lives. The impact of care work on social lives is decidedly mixed. Some grandparents find that there is little impact, in part because they make a point of seeing old friends, traveling, and

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Grandparenting Children with Disabilities

Grandparenting Children with Disabilities

Madonna Harrington Meyer • Ynesse Abdul-Malak

Grandparenting Children with Disabilities

Madonna Harrington Meyer Department of Sociology Syracuse University Syracuse, NY, USA

Ynesse Abdul-Malak Colgate University Hamilton, NY, USA

ISBN 978-3-030-39054-9 ISBN 978-3-030-39055-6 https://doi.org/10.1007/978-3-030-39055-6

(eBook)

© Springer Nature Switzerland AG 2020 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors, and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, expressed or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. This Springer imprint is published by the registered company Springer Nature Switzerland AG. The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland

When he gets to laughing, that is the sweetest sound to me in the whole wide world. And we will laugh sometimes for an hour, and I sometimes don’t even remember what we’re laughing at. We don’t go out as much because we live in an apartment building and we have stairs, and because there’s no ramps and that apartment complex doesn’t want to put in ramps, and because we can’t afford to put in ramps. . .But, it’s his equipment is really heavy, and I have to be the one to carry his equipment down the steps . . .They’re very heavy and I just can’t do it by myself. Connie, age 57, and Andy, age two and one-half, who has cerebral palsy

For Ellen, Maureen, Sam, Tyreke, and Jeff MHM For Leila, Ziad, and Sami YAM

Acknowledgements

We are enormously grateful to each of the 50 grandparents who took time out of their very busy lives to complete interviews with us. They are an especially varied group united by a steely determination to try to provide the best care possible for their grandchildren with disabilities, whatever the impact on their own wellbeing. We are enormously grateful for vital support of graduate students provided by the Syracuse University Aging Studies Institute and the Center for Pol