The Ethics of Medical Data Donation

This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the cha

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Jenny Krutzinna Luciano Floridi Editors

The Ethics of Medical Data Donation

Philosophical Studies Series Volume 137

Editor-in-Chief Luciano Floridi, University of Oxford, Oxford Internet Institute, United Kingdom Mariarosaria Taddeo, University of Oxford, Oxford Internet Institute, United Kingdom Executive Editorial Board Patrick Allo, Vrije Universiteit Brussel, Belgium Massimo Durante, Università degli Studi di Torino, Italy Phyllis Illari, University College London, United Kingdom Shannon Vallor, Santa Clara University Board of Consulting Editors Lynne Rudder Baker, University of Massachusetts at Amherst Stewart Cohen, Arizona State University, Tempe Radu Bogdan, Tulane University Marian David, University of Notre Dame John M. Fischer, University of California at Riverside Keith Lehrer, University of Arizona, Tucson Denise Meyerson, Macquarie University François Recanati, Institut Jean-Nicod, EHESS, Paris Mark Sainsbury, University of Texas at Austin Barry Smith, State University of New York at Buffalo Nicholas D. Smith, Lewis & Clark College Linda Zagzebski, University of Oklahoma

More information about this series at http://www.springer.com/series/6459

Jenny Krutzinna  •  Luciano Floridi Editors

The Ethics of Medical Data Donation

Editors Jenny Krutzinna Department of Administration and Organization Theory University of Bergen Bergen, Norway

Luciano Floridi Oxford Internet Institute University of Oxford Oxford, UK The Alan Turing Institute London, UK

ISSN 0921-8599     ISSN 2542-8349 (electronic) Philosophical Studies Series ISBN 978-3-030-04362-9    ISBN 978-3-030-04363-6 (eBook) https://doi.org/10.1007/978-3-030-04363-6 Library of Congress Control Number: 2018966803 © The Editor(s) (if applicable) and The Author(s) 2019. This book is an open access publication. Open Access This book is licensed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence and indicate if changes were made. The images or other third party material in this book are included in the book’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the book's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors, and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of