The EuroQol Group after 25 years
The EuroQol Group first met in Rotterdam in May 1987 determined to develop a standardised non-disease-specific instrument for valuing health-related quality of life. The book traces the activities of the Group over the next 25 years. The instrument constr
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Richard Brooks
The EuroQol Group after 25 years
Richard Brooks EuroQol Group Rotterdam The Netherlands
ISBN 978-94-007-5157-6 ISBN 978-94-007-5158-3 (eBook) DOI 10.1007/978-94-007-5158-3 Springer Dordrecht Heidelberg New York London Library of Congress Control Number: 2012946207 # Springer Science+Business Media Dordrecht 2013 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. Exempted from this legal reservation are brief excerpts in connection with reviews or scholarly analysis or material supplied specifically for the purpose of being entered and executed on a computer system, for exclusive use by the purchaser of the work. Duplication of this publication or parts thereof is permitted only under the provisions of the Copyright Law of the Publisher’s location, in its current version, and permission for use must always be obtained from Springer. Permissions for use may be obtained through RightsLink at the Copyright Clearance Center. Violations are liable to prosecution under the respective Copyright Law. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. While the advice and information in this book are believed to be true and accurate at the date of publication, neither the authors nor the editors nor the publisher can accept any legal responsibility for any errors or omissions that may be made. The publisher makes no warranty, express or implied, with respect to the material contained herein. Printed on acid-free paper Springer is part of Springer Science+Business Media (www.springer.com)
Foreword
When a small group of people from differing professional backgrounds and disciplines met in 1987 with the common aim of developing a health-related quality of life instrument that would suit their requirements it is doubtful if any of the participants expected that the resulting instrument would have the global reach it has today. This book shows the detailed multi-disciplinary work that went into the original construction of the EuroQol, later to be termed EQ-5D, and to subsequent developments – many language versions, a child/youth version EQ-5D-Y, and the 5-level version EQ-5D-5L. In all the early documentation there is no explicit indication of who ‘invented’ the ‘EuroQol’ term – essentially it just ‘emerged’ by the time of the 5th Meeting in July 1989! Once the EuroQol instrument was in place and in the public domain there was a surprising (to most EuroQol Group members), an
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