The reliability of the health related quality of life questionnaire PedsQL 3.0 cancer module in a sample of Swedish chil
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RESEARCH ARTICLE
Open Access
The reliability of the health related quality of life questionnaire PedsQL 3.0 cancer module in a sample of Swedish children Peter Sand1*, Anna Nilsson Kleiberg2, Marizela Kljajić3 and Birgitta Lannering4
Abstract Background: The Pediatric Quality of Life Inventory (PedsQL) is a modular instrument, designed to integrate generic and disease specific measures, and includes both self- and proxy-reports. The aim of the study was to assess the reliability and limited validity of the Swedish version of the disease specific Pediatric Quality of Life Inventory 3.0 Cancer Module Scales (PedsQL 3.0), in a sample of Swedish children diagnosed with cancer. Method: A total of 94 families at The Queen Silvia Children’s Hospital, Sahlgrenska University participated in the study. The Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL 4.0) and the PedsQL 3.0 were administered to 63 children (aged 5–18 years) with cancer and to 94 parents of children with cancer aged 2– 18 years. Results: The internal consistency of the PedsQL 3.0, reached or exceeded Cronbach’s alpha values of 0.70 for both -self- and proxy-reports. The PedsQL 4.0 and PedsQL 3.0 were highly correlated (r = 0.94 for proxy-reports and r = 0.91 for self-reports), indicating convergent validity. Conclusion: PedsQL 3.0 Cancer Module Scales can be used as a valuable tool for measuring cancer-specific HRQOL in child populations, both in research and in clinical practice. Keywords: Children, Parents, Cancer, Health-related quality of life
Background The advances in cancer treatment over the past decades have increased the survival rate in childhood cancer. As of today four out of five children survive their cancer diagnosis, however with the risk of physical, neurocognitive and psychosocial long term side effects. The psychosocial consequences of pediatric cancer are well documented, as are the needs for routinely systematic assessments to follow up on psychosocial health for both patients and their families [8].
* Correspondence: [email protected] 1 Department of Psychiatry and Neurochemistry, Institute of Neuroscience and Physiology, Sahlgrenska Academy, Gothenburg University, Sahlgrenska University Hospital, Gothenburg, Sweden Full list of author information is available at the end of the article
The increased survivorship as well as the documented side effects of chemotherapy and radiation have placed emphasis on the concept of health related quality of life (HRQOL) in pediatric cancer patients, both during and after treatment [18, 6, 13, 16]. The HRQOL concept encompasses the dimension physical functioning, including health status and functional status, as well as the dimension psychosocial functioning, including emotional-, social and role functioning [20]. Although sometimes used interchangeably with the concept quality of life (QOL) HRQOL has been suggested to be the appropriate term for QOL dimensions expedient to the health care services [21]. HRQOL instruments for the pediatric population generally compris
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