Understanding Experiences of Moral Distress in End-of-Life Care Among US and UK Physician Trainees: a Comparative Qualit
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Department of Family Medicine, University of California, San Francisco, San Francisco, CA, USA; 2Institute of Health Policy Studies, University of California, San Francisco, San Francisco, CA, USA; 3Department of Medicine, Stanford University, Stanford, CA, USA; 4Department of Medicine, Division of Hospital Medicine, University of California, San Francisco, San Francisco, CA, USA.
BACKGROUND: Moral distress is a state in which a clinician cannot act in accordance with their ethical beliefs because of external constraints. Physician trainees, who work within rigid hierarchies and who lack clinical experience, are particularly vulnerable to moral distress. We examined the dynamics of physician trainee moral distress in end-of-life care by comparing experiences in two different national cultures and healthcare systems. OBJECTIVE: We investigated cultural factors in the US and the UK that may produce moral distress within their respective healthcare systems, as well as how these factors shape experiences of moral distress among physician trainees. DESIGN: Semi-structured in-depth qualitative interviews about experiences of end-of-life care and moral distress. PARTICIPANTS: Sixteen internal medicine residents in the US and fourteen junior doctors in the UK. APPROACH: The work was analyzed using thematic analysis. KEY RESULTS: Some drivers of moral distress were similar among US and UK trainees, including delivery of potentially inappropriate treatments, a poorly defined care trajectory, and involvement of multiple teams creating different care expectations. For UK trainees, healthcare team hierarchy was common, whereas for US trainees, pressure from families, a lack of guidelines for withholding inappropriate treatments, and distress around physically harming patients were frequently cited. US trainees described how patient autonomy and a fear of lawsuits contributed to moral distress, whereas UK trainees described how societal expectations around resource allocation mitigated it. CONCLUSION: This research highlights how the differing experiences of moral distress among US and UK physician trainees are influenced by their countries’ healthcare cultures. This research illustrates how experiences of moral distress reflect the broader culture in which it occurs and suggests how trainees may be particularly vulnerable to it. Clinicians and healthcare leaders in both countries can learn from each other about policies and practices that might decrease the moral distress trainees experience. Prior Presentations N/A Received June 4, 2020 Accepted October 12, 2020
KEY WORDS: moral distress; house staff; resident; ethics; end-of-life; trainee. J Gen Intern Med DOI: 10.1007/s11606-020-06314-y © Society of General Internal Medicine 2020
INTRODUCTION
As front-line clinicians, physician trainees are particularly vulnerable to moral distress, which adversely affects both them and their patients.1–4 Moral distress occurs when a clinician is unable to act in accordance with their ethical beliefs due to external constraints, particul
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