Why do children and adolescents with epilepsy disclose or not disclose their condition to their friends?
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ORIGINAL ARTICLE
Why do children and adolescents with epilepsy disclose or not disclose their condition to their friends? Sarah Jeschke 1 & Sarah Woltermann 2,3 & Martina Patrizia Neininger 3 & Josefine Pauschek 1 & Wieland Kiess 2 & Thilo Bertsche 3 & Astrid Bertsche 1,2 Received: 6 February 2020 / Revised: 15 April 2020 / Accepted: 22 April 2020 # The Author(s) 2020
Abstract A diagnosis of epilepsy substantially influences the lives of affected children and adolescents, and concealing the diagnosis can generate additional stress. However, little is known about whether children and adolescents communicate their diagnosis to their friends. We performed a survey at two German university hospitals. Epilepsy patients aged 6–18 years were asked why they did or did not disclose their condition to their friends. A total of 101 patients (44 female, 57 male) were interviewed. Twenty-one (21%) informed all their friends about their epilepsy, 63 (62%) informed only certain friends, and 3 (3%) did not specify. Fourteen (14%) did not inform any friends. Their reasons for informing their friends were trust in friends (47/87; 54%); questions from friends, e.g., about missed school days (29/87; 33%); a wish for friends to be informed in case of an emergency (15/87; 17%); and a desire to live openly with the condition (8/87; 9%). The reasons for not informing friends were fear of stigmatization/shame (4/14; 29%), discouragement from parents (3/14; 21%), and a wish for confidentiality (3/14; 21%). Conclusion: Most children and adolescents inform their friends about their epilepsy. Fear of stigmatization is the main reason for not informing friends about this condition. What is Known • An epilepsy diagnosis is a life-changing event for affected children and adolescents. • Having to conceal the diagnosis can be very stressful. What is New • Most pediatric epilepsy patients informed at least some close friends about their diagnosis motivated by trust in friends; questions from friends, e.g., about missed school days; and a wish for friends to be informed in case of an emergency. • Fear of stigmatization/shame, discouragement from parents, and a wish for confidentiality were the motivations for concealing the disease.
Keywords Epilepsy . Children . Friends . Communication . Stigmatization . Survey Communicated by Gregorio Paolo Milani Electronic supplementary material The online version of this article (https://doi.org/10.1007/s00431-020-03661-0) contains supplementary material, which is available to authorized users. * Astrid Bertsche [email protected]
Wieland Kiess [email protected]
Sarah Jeschke [email protected] Sarah Woltermann [email protected]
Thilo Bertsche [email protected] 1
Neuropaediatrics, University Hospital for Children and Adolescents, Ernst-Heydemann-Str. 8, 18057 Rostock, Germany
2
Center for Pediatric Research, University Hospital for Children and Adolescents, Liebigstraße 20a, 04103 Leipzig, Germany
3
Drug Safety Center a
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