Biobanking for Public Health
Genome-based biobanking requires a new governance model which integrates the personal values of the people concerned, the medical knowledge necessary to define a “genomic indication” as well as the procedural law which enables those professions and famili
- PDF / 3,080,282 Bytes
- 267 Pages / 439.37 x 666.142 pts Page_size
- 69 Downloads / 196 Views
Herausgegeben von Peter Axer, Gerhard Dannecker, Thomas Hillenkamp, Lothar Kuhlen, Eibe H. Riedel, Jochen Taupitz (Geschäftsführender Direktor)
Weitere Bände Siehe http://www.springer.com/series/4333
Peter Dabrock • Jochen Taupitz • Jens Ried Editors
Trust in Biobanking Dealing with Ethical, Legal and Social Issues in an Emerging Field of Biotechnology
1C
Series Editors Professor Dr. Peter Axer Professor Dr. Gerhard Dannecker Professor Dr. Dr. h.c. Thomas Hillenkamp Professor Dr. Lothar Kuhlen Professor Dr. Eibe Riedel Professor Dr. Jochen Taupitz (Geschäftsführender Direktor) Editors Professor Dr. Peter Dabrock Dr. Jens Ried Friedrich-Alexander-University Erlangen-Nuremberg Chair for Systematic Theology / Ethics Faculty of Philosophy and Department of Theology Kochstraße 6 91056 Erlangen Germany [email protected] [email protected]
Professor Dr. Jochen Taupitz University of Mannheim Institute for Medical and Health Law and Bioethics Schloss, Westflügel 68131 Mannheim Germany [email protected]
Funded by the German Federal Ministry of Education and Research (grant 01GP0682) ISSN 1617-1497 ISBN 978-3-540-78844-7 e-ISBN 978-3-540-78845-4 DOI 10.1007/978-3-540-78845-4 Springer Heidelberg Dordrecht London New York Library of Congress Control Number: 2011940500 © Springer-Verlag Berlin Heidelberg 2012 This work is subject to copyright. All rights are reserved, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilm or in any other way, and storage in data banks. Duplication of this publication or parts thereof is permitted only under the provisions of the German Copyright Law of September 9, 1965, in its current version, and permission for use must always be obtained from Springer. Violations are liable to prosecution under the German Copyright Law. The use of general descriptive names, registered names, trademarks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. Printed on acid-free paper Springer is part of Springer Science+Business Media (www.springer.com)
Preface
Biobanks are promising instruments of biomedical research and are increasingly considered as essential tools for translational medicine in particular. However, there is concern that the collection of biomarkers in the course of biobanking endeavours could be misused, and thus infringe rights and almost universally accepted ethical standards. In response to these concerns, various sets of governing principles have been established in recent years or are currently discussed in order to protect individuals, families, communities and societies against involuntary use of their data, stigmatisation, discrimination or exclusion that might be caused by data misuse. All efforts addressing these concerns have been grounded on wellest
Data Loading...
