Care at the End of Life An Economic Perspective
This work carefully guides the reader through the methodological, policy and ethical challenges facing health economists conducting research in palliative care. It has collected the opinions of many cutting-edge researchers. Those who design and conduct
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Care at the End of Life An Economic Perspective
Care at the End of Life
Jeff Round Editor
Care at the End of Life An Economic Perspective
Editor Jeff Round Lecturer in Health Economics School of Social and Community Medicine University of Bristol Bristol UK
ISBN 978-3-319-28266-4 ISBN 978-3-319-28267-1 DOI 10.1007/978-3-319-28267-1
(eBook)
Library of Congress Control Number: 2016933266 Springer Cham Heidelberg New York Dordrecht London © Springer International Publishing Switzerland 2016 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. Printed on acid-free paper Adis is a brand of Springer Springer International Publishing AG Switzerland is part of Springer Science+Business Media (www. springer.com)
Preface
In the summer of 2010, I joined the Marie Curie Palliative Care Research Unit at University College London, then under the directorship of Dr Louise Jones. My role was to support the work of the unit as the in-house health economist. Before I started in the post, I expected that I would be doing many of the things a health economist does on a day-to-day basis when working in a clinical research setting – conducting economic evaluations of clinical trials or building decision models to investigate the cost-effectiveness of interventions. And though I did do these things, I quickly learned that there was a lot that economists didn’t yet know about end of life care. We still know very little about how much is being spent on end of life care or whether it is being spent to good effect. There is disagreement in the field about how best to measure outcomes for patients. There is no consensus on how (or even if) to include in evaluations costs and benefits not just for the patient but also of those close to them. There are also important questions to be answered about whether end of life care should be considered a special case, deserving of greater resources than other clinical areas. We must also ask whether the statistical and other methodological tools we have av
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