Caring for the Ventilator Dependent Child A Clinical Guide
This book is an important new resource for clinicians caring for ventilator dependent children, who often have complex health care needs, are supported by advanced technology and are at high-risk of serious complications. Despite the complicated health ca
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Laura M. Sterni John L. Carroll Editors
Caring for the Ventilator Dependent Child A Clinical Guide
Respiratory Medicine Series Editor: Sharon I.S. Rounds
More information about this series at http://www.springer.com/series/7665
Laura M. Sterni • John L. Carroll Editors
Caring for the Ventilator Dependent Child A Clinical Guide
Editors Laura M. Sterni, MD Eudowood Division of Pediatric Respiratory Sciences The Johns Hopkins University School of Medicine Baltimore, MD, USA
John L. Carroll, MD Division of Pediatric Pulmonary and Sleep Medicine University of Arkansas for Medical Sciences Little Rock, AR, USA
ISSN 2197-7372 ISSN 2197-7380 (electronic) Respiratory Medicine ISBN 978-1-4939-3747-9 ISBN 978-1-4939-3749-3 (eBook) DOI 10.1007/978-1-4939-3749-3 Library of Congress Control Number: 2016943202 © Springer Science+Business Media New York 2016 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. Printed on acid-free paper This Humana Press imprint is published by Springer Nature The registered company is Springer Science+Business Media LLC New York
This book is dedicated to the patients who require chronic home ventilator support and the families and professionals who care for them. We are inspired by your resilience, creativity, and dedication. And to our families: To my husband Hank and sons Colin and Mark, with gratitude and love. (LS) To my wife Tiziana and children, Maggie, Molly, and Maddy, with love and appreciation. (JC)
Preface
Children with chronic respiratory failure are living longer, healthier lives than ever before due to advances in medical care, respiratory-related technologies, and respiratory equipment for home use. Over the last several decades, emphasis on the importance of family and community in the care of children with special healthcare needs has resulted in a major shift from institutional/residential care settings to long-term care in the home. Very few children with chronic medical conditions and special healthcare needs are more complex a
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