CHACO outreach project: the development of a primary health care-based medical genetic service in an Argentinean provinc

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ORIGINAL ARTICLE

CHACO outreach project: the development of a primary health care-based medical genetic service in an Argentinean province C. Z. Barreiro & M. P. Bidondo & J. A. Garrido & J. Deurloo & E. Acevedo & A. Luna & E. Gutiérrez & C. A. Dellamea & C. Picón & K. Torres & M. F. De Castro & M. V. Torrado & M. L. Teiber & S. Kassab & P. Elmeaudy & J. Rodriguez

Received: 18 June 2013 / Accepted: 24 June 2013 / Published online: 1 August 2013 # Springer-Verlag Berlin Heidelberg 2013

Abstract Dissemination of knowledge in genetics to be applied in medicine has created a growing need for capacity building in health care workers. The CAPABILITY ARGENTINA outreach project protocol was designed as a model to introduce genetics in areas without genetic services. Our aim was for genetic health care to become part of primary care in an Argentine province lacking genetic services. The program was innovative as professionals from the referral center (Garrahan Hospital S.A.M.I.C.) traveled to remote areas to train professionals through problem-based education. A logical framework was designed for a local needs assessment. Teaching materials (Powerpoint presentations, printed syllabus, and CD) and a web page were developed. A demonstration project was carried out in the Province of Chaco, Argentina. A total of 485 health workers were trained. The number of consultations increased significantly in participating areas comparing before and after the training period. To support this increase, a complementary project was set up from a public hospital sponsored from within Argentina to build a cytogenetic laboratory in the capital of the Province of Chaco. The model was improved for reproduction in other areas in Argentina. CAPABILITYARGENTINA is a capacity

This article is part of the special issue "Capability/GenTEE" C. Z. Barreiro (*) : M. P. Bidondo : J. A. Garrido : J. Deurloo : E. Acevedo : A. Luna : M. F. De Castro : M. V. Torrado : M. L. Teiber : S. Kassab : P. Elmeaudy : J. Rodriguez Hospital de Pediatría S.A.M.I.C. “Prof. Dr. Juan P. Garrahan”, Combate de los Pozos 1881, C.P. 1245, Buenos Aires, Argentina e-mail: [email protected] E. Gutiérrez : C. A. Dellamea : C. Picón : K. Torres Hospital Avelino Castelan, Resistencia, Chaco, Argentina

building model for training of primary care professionals in genetics that may be applied to other medical specialties. The outcomes of the programme have a direct impact on clinical practice. Keywords Genetics in primary care . Genetics education . CAPABILITY . Capacity building . CHACO-Argentina

Introduction The rapid advances of genetic knowledge and technologies have created a growing need for capacity building in genetic service delivery infrastructures. This includes health workforce training in order to further the dissemination of genetics to be applied in medicine and to improve both patient care and health outcomes. Capacity building should be aimed at the development of competency in the field of genetics allowing health care workers to familiarise with new technolog