Developing a culturally targeted video to enhance the use of genetic counseling in Latina women at increased risk for he
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ORIGINAL ARTICLE
Developing a culturally targeted video to enhance the use of genetic counseling in Latina women at increased risk for hereditary breast and ovarian cancer Alejandra Hurtado-de-Mendoza 1,2 & Kristi D. Graves 1,2 & Sara Gómez-Trillos 1,2 & Minna Song 1 & Lyndsay Anderson 3 & Claudia Campos 4 & Pilar Carrera 5 & Nancy Ostrove 6 & Beth N. Peshkin 1,2 & Marc D. Schwartz 1,2 & Nan Ficca 7 & Ana-Paula Cupertino 8 & Nathaly Gonzalez 1,9 & Andrea Otero 10 & Elmer Huerta 11 & Vanessa B. Sheppard 12 Received: 18 November 2018 / Accepted: 25 April 2019 # Springer-Verlag GmbH Germany, part of Springer Nature 2019
Abstract Disparities for genetic cancer risk assessment (GCRA) for hereditary breast and ovarian cancer (HBOC) persist between Latina and non-Hispanic Whites. There are few tested culturally targeted interventions. We developed a culturally targeted video to enhance GCRA uptake in at-risk Latinas. Interviews with healthcare providers (n = 20) and at-risk Latinas (n = 20) were conducted as formative research to inform the development of the video. Findings from the formative research, health behavior conceptual models, and evidence-based risk communication strategies informed the messages for the script. Then, we conducted a focus group with at-risk Latinas (n = 7) to obtain feedback for final refinement of the script. The final video was piloted for acceptability and potential dissemination in a sample of Latino community health workers (CHWs) (n = 31). Providers and at-risk Latinas suggested using simple language and visual aids to facilitate comprehension. Participants in the focus group identified areas for further clarification (e.g., cost). The result was an 18-min video that illustrates BRosa’s^ story. Rosa learns about HBOC risk factors and overcomes barriers to attend genetic counseling. CHWs reported high overall satisfaction with the video (M = 9.61, SD = .88, range 1–10). A culturally targeted video has the potential to reach underserved populations with low literacy and English proficiency. Keywords Hereditary breast and ovarian cancer . Genetic counseling . Latinas . Health disparities . Intervention, translational genomics, health communication
* Alejandra Hurtado-de-Mendoza [email protected]
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EXPRE, LLC, Gaithersburg, MD, USA
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National Conservatory of Dramatic Arts, Washington, DC, USA
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Department of Oncology, Georgetown Lombardi Comprehensive Cancer Center, Georgetown University, 3300 Whitehaven Street, Suite 4100, Washington, DC 20007, USA
Cancer Prevention and Control Program, John Theurer Cancer Center, Hackensack University Medical Center, Hackensack, NJ, USA
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Jess and Mildred Fisher Center for Hereditary Cancer and Clinical Cancer Genomics, Washington, DC, USA
Capital Breast Cancer Center, 1000 New Jersey Ave, SE, Washington, DC, USA
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Department of Nursing, California State University, Sacramento, USA
Instituto de Medicina Oncológica y Molecular de Asturias (IMOMA), Av. Richard Grandío, 33193 Oviedo (Asturias), Spain
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Nueva Vida, DC Office—Alex
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