Developing dimensions for a new preference-based quality of life instrument for older people receiving aged care service
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Developing dimensions for a new preference‑based quality of life instrument for older people receiving aged care services in the community Jenny Cleland1 · Claire Hutchinson1 · Candice McBain2 · Ruth Walker1 · Rachel Milte1 · Jyoti Khadka1,3 · Julie Ratcliffe1 Accepted: 19 September 2020 © The Author(s) 2020
Abstract Purpose To identify the salient quality of life characteristics relevant to older people in receipt of community aged care services in order to develop dimensions for a draft descriptive system for a new preference-based quality of life instrument. Methods Forty-one in-depth semi-structured interviews were undertaken with older people (65 years and over) receiving community aged care services across three Australian states to explore quality of life characteristics of importance to them. The data were analysed using framework analysis to extract broader themes which were organised into a conceptual framework. The data were then summarised into a thematic chart to develop a framework matrix which was used to interpret and synthesise the data. Care was taken throughout to retain the language that older people had adopted during the interviews to ensure that appropriate language was used when identifying and developing the quality of life dimensions. Results The analysis resulted in the identification of five salient quality of life dimensions: independence, social connections, emotional well-being, mobility, and activities. Conclusion This research finds that quality of life for older people accessing aged care services goes beyond health-related quality of life and incorporates broader aspects that transcend health. The findings represent the first stage in a multiphase project working in partnership with older people to develop a new preference-based instrument of quality of life for informing quality assessment and economic evaluation in community aged care. In future work, draft items will be developed from these dimensions and tested in face validity interviews before progressing to further psychometric testing. Keywords Quality of life · Older people · Aged care services · Preference-based instrument · Economic evaluation
Introduction The policy and practice landscape for the Australian aged care sector, in common with the aged care sectors of many other countries, is changing with a significant increase in * Jenny Cleland [email protected] 1
College of Nursing and Health Sciences, Flinders University, Adelaide, Australia
2
John Walsh Centre for Rehabilitation Research, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia
3
Healthy Ageing Research Consortium, Registry of Older South Australians (ROSA), South Australian Health and Medical Research Institute (SAHMRI), Adelaide, Australia
recent years in the incidence of older people accessing community aged care services [1]. In Australia, the home care packages (HCP) programme is the fastest growing sector of the aged care system with 116,800 people receiving a HCP in 2017–2018 co
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