Development and assessment of a verbal response scale for the Patient-Specific Functional Scale (PSFS) in a low-literacy
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Development and assessment of a verbal response scale for the Patient‑Specific Functional Scale (PSFS) in a low‑literacy, non‑western population Anupa Pathak1 · Saurab Sharma1,2 · Allen W. Heinemann3,4 · Paul W. Stratford5 · Daniel Cury Ribeiro6 · J. Haxby Abbott1 Accepted: 11 September 2020 © Springer Nature Switzerland AG 2020
Abstract Purpose The Patient-Specific Functional Scale (PSFS) is a routinely used measure of physical function with a 0–10 response scale. We aimed to develop verbal response options for the PSFS, pre-test it for use in a multilingual, low-literacy country— Nepal, and compare preference and error rates between numeric and verbal scale. We hypothesized that a verbal scale would be preferred by respondents and yield fewer errors. Method We interviewed 42 individuals with musculoskeletal, neurological, and cardiopulmonary conditions to understand how people describe varying levels of physical ability. Transcripts were thematically analyzed, and through consensus, we developed two sets of verbal responses for the PSFS. Next, we pre-tested the scales on an additional 119 respondents following which participants were asked to specify their preferred scale. Error rates were analyzed retrospectively using pre-specified criteria. Results Participants described their ability in terms of the quality (95%) and the quantity of task performance (88%). Although the verbal scales were preferred over the numeric scale (50% versus 12%), there was no significant difference in error rates between numeric (34%) and verbal scales (32% and 36%). Higher error rates were associated with greater age, fewer years of education, and inexperience with numeric scales. Conclusion Despite a higher preference for verbal scale, 1 out of 3 patients made errors in using the PSFS, even with an interview format. The error rates were higher among participants with low literacy. The findings raise questions about the utility of PROMs in countries with low literacy rates. Keywords Cross-cultural adaptation · Patient-specific functional scale · Patient-reported outcome · Functional assessment · Developing countries
Electronic supplementary material The online version of this article (https://doi.org/10.1007/s11136-020-02640-0) contains supplementary material, which is available to authorized users. * Anupa Pathak [email protected] 1
Centre for Musculoskeletal Outcomes Research (CMOR), Department of Surgical Sciences, Dunedin School of Medicine, University of Otago, Dunedin, New Zealand
2
Department of Physiotherapy, Kathmandu University School of Medical Sciences, Dhulikhel, Nepal
3
Department of Physical Medicine and Rehabilitation, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
4
Center for Rehabilitation Outcomes Research, Shirley Ryan AbilityLab, Chicago, IL, USA
5
School of Rehabilitation Science, McMaster University, Hamilton, Canada
6
Centre for Health, Activity and Rehabilitation Research (CHARR), School of Physiotherapy, University of Otago, Dunedi
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