Effects of spiritual resilience on psychological distress and health-related quality of life in Chinese people with Park

  • PDF / 667,148 Bytes
  • 9 Pages / 595.276 x 790.866 pts Page_size
  • 70 Downloads / 180 Views

DOWNLOAD

REPORT


Effects of spiritual resilience on psychological distress and health‑related quality of life in Chinese people with Parkinson’s disease Jojo Yan Yan Kwok1   · Edmond Pui Hang Choi1   · Pui Hing Chau1   · Janet Yuen Ha Wong1   · Daniel Yee Tak Fong1   · M. Auyeung2 Accepted: 12 June 2020 © Springer Nature Switzerland AG 2020

Abstract Purpose  Health-related quality of life (HRQOL) is an increasingly critical outcome of chronic illness care. However, its disease-independent attributes, particularly its spiritual resilient indicators, for people with Parkinson’s disease (PD) have not been explicitly examined. This study aimed to (i) assess the associations between psychological distress, spiritual resilience and HRQOL, and (ii) examine the mediating effects of spiritual resilience on psychological distress and HRQOL amongst individuals with PD. Methods  This is a secondary data analysis of the baseline data of a clinical trial that involved 138 individuals with PD. The subjects completed a structured questionnaire assessing psychological distress in terms of anxiety and depression, spiritual resilience in terms of perceived affliction and perceived equanimity, severity of motor symptoms and disease-specific HRQOL. Results  Analysis by independent t test suggested that distressed individuals with PD demonstrated less spiritual resilience and presented poorer HRQOL than non-distressed individuals with PD. Multiple linear regression models revealed that high emotional distress was associated with low spiritual resilience and poor HRQOL. The mediation analysis found that after simultaneously controlling for the degree of perceived affliction and perceived equanimity, a significant reduction was observed in the direct effect between psychological distress and HRQOL. This result indicated the partially mediating roles of perceived affliction and equanimity in the pathways between psychological distress and HRQOL. Conclusion  In order to enhance HRQOL, PD interventions should address the spiritual resilience of patients in addition to providing psychological care and physical relief of symptoms. Keywords  Parkinson’s disease · Psychological distress · Spirituality · Resilience · HRQOL · Rehabilitation

* Jojo Yan Yan Kwok [email protected]; [email protected]

M. Auyeung [email protected]

Edmond Pui Hang Choi [email protected]

1



Pui Hing Chau [email protected]

School of Nursing, LKS Faculty of Medicine, The University of Hong Kong, Pokfulam, Hong Kong SAR

2



Department of Medicine, Pamela Youde Nethersole Eastern Hospital, Chai Wan, Hong Kong SAR

Janet Yuen Ha Wong [email protected] Daniel Yee Tak Fong [email protected]

13

Vol.:(0123456789)



Introduction As the second most common neurodegenerative disease, Parkinson’s disease (PD) is a chronic condition that results in not only physical deterioration, but also a spectrum of psychosocial outcomes that may impose multifaceted restrictions on one’s normal daily living [1]. Physical impairments, such as tremors, rigidity, bradykinesia and postural instability are comm