Empowering caregivers in the radiotherapy process: the results of a randomized controlled trial
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ORIGINAL ARTICLE
Empowering caregivers in the radiotherapy process: the results of a randomized controlled trial Neşe Uysal 1 & Gülcan Bağçivan 2 & Ayşe Özkaraman 3 & Akile Karaaslan Eşer 4 & Ferhan Çetin 5 & Behice Belkıs Çalışkan 6 & Aygül Elöz 7 & Emine İnce Gündoğdu 8 & Gökçe Kaan Olcay 9 & Bektaş Kaya 9 & Yeter Soylu 9 Received: 26 June 2020 / Accepted: 4 September 2020 # Springer-Verlag GmbH Germany, part of Springer Nature 2020
Abstract Purpose The present study aims to evaluate the effectiveness of a mobile-assisted empowerment program developed specifically for caregivers of cancer patients undergoing radiotherapy. Methods In this study, seventy-four individuals who gave care for cancer patients that received radiotherapy between September 2019 and May 2020 were randomized to receive a mobile-assisted empowerment program or standard care. The mobile-assisted empowerment program comprised of education and information related to the radiotherapy process, videos, activities, and question-and-answer modules to support caregivers during the radiotherapy process. Outcome measures were collected at baseline (day 1 of radiotherapy) and on day 21 and included caregiver demographics, distress, quality of life, and coping style using validated questionnaires. Results Compared with baseline, individuals’ mean scores of distress were lower in the empowerment group than the control group (p < 0.001). General quality of life and sub-dimension mean scores were higher in the empowerment group than the control group (p ≤ 0.05). There was no difference in the coping style average scores (p ≥ 0.05) between the two groups. Conclusions This study supports the findings that a mobile-supported empowerment program reduced the level of caregiver distress and increased quality of life during their loved one’s treatment with radiotherapy. Keywords Caregiver . Empower . Mobile application . Radiotherapy
* Neşe Uysal [email protected]
Bektaş Kaya [email protected] Yeter Soylu [email protected]
Gülcan Bağçivan [email protected] Ayşe Özkaraman [email protected] Akile Karaaslan Eşer [email protected] Ferhan Çetin [email protected] Behice Belkıs Çalışkan [email protected] Aygül Elöz [email protected] Emine İnce Gündoğdu [email protected] Gökçe Kaan Olcay [email protected]
1
Amasya University Faculty of Health Science, Amasya, Turkey
2
Koç University School of Nursing , Istanbul, Turkey
3
Eskişehir Osmangazi University Faculty of Health Science, Eskişehir, Turkey
4
Başkent University Faculty of Health Science, Ankara, Turkey
5
Hacettepe University Hospital, Ankara, Turkey
6
Beykent University School of Health Science, İstanbul, Turkey
7
Ankara Provincial Health Directorate, Ankara, Turkey
8
Lösante Children’s and Adult Hospital, Ankara, Turkey
9
Dr. Abdurrahman Yurtaslan Ankara Oncology Training and Research Hospital, Ankara, Turkey
Support Care Cancer
Introduction Many individuals diagnosed with cancer benefit from a caregiver who supports them during thei
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