Engaging patients and families in pediatric radiology
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MINISYMPOSIUM: PATIENT EXPERIENCE IN PEDIATRIC RADIOLOGY
Engaging patients and families in pediatric radiology Nadja Kadom 1,2 Received: 19 March 2020 / Revised: 17 April 2020 / Accepted: 22 May 2020 / Published online: 15 September 2020 # Springer-Verlag GmbH Germany, part of Springer Nature 2020
Abstract While patient and family-centered care (PFCC) is currently a hot topic in medicine, it has long been a specific focus of pediatrics. The concept of PFCC includes a change in culture where physicians and patients move away from paternalism and instead view patients and families as partners in care. Although there are many ways in which adult-focused radiologists can learn from pediatric radiologists as leaders in PFCC, there remain many opportunities for improvement for all radiologists. Keywords Children . Patient- and family-centered care . Pediatric radiology . Radiology
Introduction The importance of patient- and family-centered care (PFCC) is often underemphasized because of the assumption that providing excellent medical care automatically meets this goal. The difference between providing medical care and providing PFCC was articulated nicely in a statement by the Institute for Patient- and Family-centered Care (IPFCC): “Patient- and family-centered care is working ‘with’ patients and families, rather than just doing ‘to’ or ‘for’ them” [1]. Current attitudes among health care providers reflect a culture of paternalism, where the physician determines the patient’s diagnosis and then selects which information to present to the patient to enhance the likelihood that the patient will agree to the intervention the physician considers best [2]. In this model, the physician’s goal is focused entirely on the patient’s well-being, regardless of any personal preferences a patient might have [2]. On the other hand, patient empowerment, which is at the core of PFCC, is a process by which patients are enabled to recognize and promote their own needs, solve their own problems, and mobilize the necessary resources to feel in control of their own lives [3]. Practicing PFCC not only improves the patient and family
experience, which is already compounded by dealing with sickness, but also leads to better health outcomes by decreasing errors and improving compliance, better health care provider satisfaction, and wiser allocation of resources [1, 4]. Pediatric medicine was among the first specialties to recognize the importance of PFCC and improve care deficiencies by addressing the specific needs of pediatric patients and their families [5–7]. In 1992, the IPFCC was founded [1], followed in 1999 by the launch of the National Institute for Children’s Healthcare Quality [8]. In 2006, the Institute for Healthcare Improvement held an inter-society meeting to advocate for partnerships with patients and families in hospitals and health systems [9]. The same year, the American Academy for Pediatrics (AAP) launched a parent advisory group to highlight its commitment to PFCC [10]. Pediatric PFCC acknowledges the need for providing e
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