Family and personal coping process after a haemorrhagic stroke, a life-history
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Family and personal coping process after a haemorrhagic stroke, a life-history Jesús Batuecas-Caletrío 1,2 & Beatriz Rodríguez-Martín 1 Accepted: 17 November 2020 # Springer Science+Business Media, LLC, part of Springer Nature 2020
Abstract Although emotional sequelae determine a stroke coping process, it has hardly been analysed on the personal and family levels through life-histories. To know the perceptions of a family unit about coping with the diagnosis of a stroke. Qualitative research based on a life-history. We made use of semi-structured interviews to collect data from a person who had suffered a stroke and two family members. Once transcribed and anonymised, the data was analysed following the constant comparative method and coding process. The haemorrhagic-stroke coping process caused changes in both the patient and her caregivers, who showed less activity and changes in family roles and dynamics that affected their socialisation and leisure time. The patient stated emotional shock with apathy, guilt, and non-acceptance of the disability. The family suffered anxiety and emotional overload. Both were satisfied with the care received during hospital admissions but missed attention to emotional aspects. Stroke has a high emotional impact on both patients and family members. Primary caregivers are key pillars of care, and they will need information, training and support. The assistance that deals with the physical and emotional needs of patients and their families from diagnosis is crucial to achieve a successful coping process, likewise a good coordination of the multidisciplinary team to improve information protocols. Keywords Caregivers . Narration . Psychological adaptation . Qualitative research . Stroke
Introduction Stroke is a sudden onset of a cerebrovascular disease that affects cerebral blood vessels, being a priority for health systems due to its high incidence and prevalence, its association with disability and its impact on the total healthcare expenditure (3–6%) (Matías-Guiu, Villoria, Oliva, Viñas, & Martí, 2009). In Spain 110,000–120,000 people suffer a stroke every year, out of which 50% will have a disability or die (Philp et al., 2013). Besides, stroke is the leading cause of death in women and the second leading cause of death in men, as well as the first cause of severe disability in adults, originating 70%
* Beatriz Rodríguez-Martín [email protected] Jesús Batuecas-Caletrío [email protected] 1
Department of Nursing, Physiotherapy and Occupational Therapy, Faculty of Health Sciences, University of Castilla-La Mancha, Avda Real Fabrica de Sedas s/n., 45600 Talavera de la Reina, Toledo, Spain
2
Nuestra Señora del Prado Hospital, Healthcare Service of Castilla-La Mancha, Talavera de la Reina, Toledo, Spain
of neurological admissions to hospitals (Andradas, 2017). Highlighting the effectiveness of prevention and reducing the severity of the initial stroke are important to diminish its economic impact (Duarte et al., 2010). After an acute stroke, many survivors have limited
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