Global Experience of Diabetes Registries: A Systematic Review
Diabetes mellitus (DM) is as a chronic metabolic disease, and disease registry plays an important role in the care of diabetes. Systematic review of diabetes registry systems in different countries has not been conducted based on evidences. This study con
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Global Experience of Diabetes Registries: A Systematic Review Roya Naemi and Leila Shahmoradi
Abstract
Introduction Diabetes mellitus (DM) is as a chronic metabolic disease, and disease registry plays an important role in the care of diabetes. Systematic review of diabetes registry systems in different countries has not been conducted based on evidences. This study conducts a systematic review to determine the goals, data elements, reports, data sources and capabilities of diabetes registry systems.
R. Naemi Health Information Management, Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences (TUMS), Tehran, Iran Department of Health Information Management, School of Paramedical Sciences, Ardabil University of Medical Sciences, Ardabil, Iran L. Shahmoradi (*) Halal Research Center of IRI, FDA, Tehran, Iran Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences (TUMS), Tehran, Iran e-mail: [email protected]; [email protected]
Method In this study, searches were conducted in four databases such as PubMed, Scopus, Web of Science and Embase to find available information on diabetes registry systems. Two researchers conducted the search separately to identify related studies based on an input criterion. All controversies were resolved by the consensus. Results 18,534 studies were identified in the primary search. After reviewing the title and abstract of the articles, 11,344 studies were excluded. Finally, 21 studies were selected for the review. The main characteristics of the diabetes registries have been cited in the study under the categories of country’s name with registry, title of the system, data sources and system developers. The information management is considered as the main goal of diabetes registry system. Data elements of diabetes registry were laboratory measurement and chronic complications. Conclusion This systematic review provides a global overview of the goals, data elements, reports, data sources and capabilities of the diabetes registries and recommends the use of diabetes registry to increase efficiency of services and quality of care.
R. Naemi and L. Shahmoradi
Keywords
RIDI
Diabetes · Diabetes mellitus · Diabetes registry · Disease registry · Registries
SGOT SGPT
Abbreviations
SNDR
ACC ADA CCOPMM
T1DM TSH WHO YSRCCYP
CSII
DCR DCRS DCs DERI DM DNPaR GDM GIS GP HDL HER ICDC IDF IOM IPES IT LDL MU NA NDR NDSS NEPDN NGDR NHG PIN PRISMA
American College of Cardiology American Diabetes Association Consultative Council on Obstetric and Paediatric Mortality and Morbidity The national register of patients treated with continuous subcutaneous insulin infusion Diabetes Collaborative Registry Danish Civil Registration System Diabetes Centres Diabetes Epidemiology Research International Diabetes mellitus Danish National Patient Register
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