Health-related quality of life and emotional well-being in patients with glioblastoma and their relatives
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CLINICAL STUDY
Health‑related quality of life and emotional well‑being in patients with glioblastoma and their relatives Pernilla Ståhl1,3 · Boglarka Fekete4,5 · Ingela Henoch3 · Anja Smits2,4,6 · Asgeir S. Jakola1,4 · Bertil Rydenhag1,4 · Anneli Ozanne2,3 Received: 23 April 2020 / Accepted: 31 August 2020 © The Author(s) 2020
Abstract Purpose The health-related quality of life (HRQoL) for patients with glioblastoma is known to be largely affected. Little is known about the HRQoL for relatives and the relationship between these two. To optimize family care, such issues need to be addressed early on, preferably from the time of diagnosis. This study aimed to describe and compare the HRQoL of patients with glioblastoma and their relatives before surgery. Methods A prospective cohort study including 89 patients diagnosed with glioblastoma and their relatives. HRQoL (Short Form Health Survey, SF-36) and emotional well-being (hospital anxiety and depression scale, HADS) were analysed with descriptive, comparative and multivariable regression analyses. Results Relatives scored worse for mental HRQoL (p
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