Patient experiences with oily skin: The qualitative development of content for two new patient reported outcome question
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Patient experiences with oily skin: The qualitative development of content for two new patient reported outcome questionnaires Robert Arbuckle*1, Mark J Atkinson2, Marci Clark3, Linda Abetz4, Jan Lohs5, Ilka Kuhagen6, Jane Harness7, Zoe Draelos8, Diane Thiboutot9, Ulrike BlumePeytavi10 and Kati Copley-Merriman11 Address: 1Mapi Values Ltd, Adelphi Mill, Grimshaw Lane, Bollington, Cheshire, SK10 5JB, UK, 2Family and Preventive Medicine, University of California, 5440 Morehouse Drive, Suite 3500, San Diego, CA 9212, USA, 3RTI Health Solutions, 3005 Boardwalk Drive, Suite 105, Ann Arbor, MI 48108, USA, 4Mapi Values Ltd, Adelphi Mill, Grimshaw Lane, Bollington, Cheshire, SK10 5JB, UK, 5Lohs Research Group, 2170 West Freeman Road, Palatin, IL 60067, USA, 6International Qualitative Marketing Research, Ludwig-Ganghoferstr. 33, Munchen D85551, Germany, 7Pfizer Global R&D, 2800 Plymouth Road, Ann Arbor, MI 48105, USA, 8Wake Forest University School of Medicine, 2444 North Main Street, High Point, NC 27262, USA, 9Pennsylvania State University College of Medicine, 500 University Drive HU14, Hershey, PA 17033, USA, 10charite – Universitatsmedizin Berlin, Chariteplatz 1, D 10117, Berlin, Germany and 11RTI Health Solutions, 3005 Boardwalk Drive, Suite 105, Ann Arbor, MI 48108, USA Email: Robert Arbuckle* - [email protected]; Mark J Atkinson - [email protected]; Marci Clark - [email protected]; Linda Abetz - [email protected]; Jan Lohs - [email protected]; Ilka Kuhagen - [email protected]; Jane Harness - [email protected]; Zoe Draelos - [email protected]; Diane Thiboutot - [email protected]; Ulrike BlumePeytavi - [email protected]; Kati Copley-Merriman - [email protected] * Corresponding author
Published: 16 October 2008 Health and Quality of Life Outcomes 2008, 6:80
doi:10.1186/1477-7525-6-80
Received: 18 April 2008 Accepted: 16 October 2008
This article is available from: http://www.hqlo.com/content/6/1/80 © 2008 Arbuckle et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Abstract Objective: To develop the content for two new patient reported outcome (PRO) measures to: a) assess the severity of symptoms; and b) the impact of facial skin oiliness on emotional wellbeing using qualitative data from face to face, and internet focus groups in Germany and the US. Methods: Using input from initial treatment satisfaction focus groups (n = 42), a review of relevant literature and expert clinicians (n = 3), a discussion guide was developed to guide qualitative inquiry using Internet focus groups (IFGs). IFGs were conducted with German (n = 26) and US (n = 28) sufferers of oily skin. Questionnaire items were generated using coded transcript data from the focus groups. Cognitive debriefing was conducted on
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