Perinatal Palliative Care A Clinical Guide
This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the c
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Perinatal Palliative Care
Erin M. Denney-Koelsch Denise Côté-Arsenault Editors
Perinatal Palliative Care A Clinical Guide
Editors Erin M. Denney-Koelsch, MD, FAAHPM Strong Memorial Hospital University of Rochester Rochester, NY USA
Denise Côté-Arsenault, PhD, RN, CPCL, FNAP, FAAN School of Nursing Saint Louis University Saint Louis, MO USA
ISBN 978-3-030-34750-5 ISBN 978-3-030-34751-2 (eBook) https://doi.org/10.1007/978-3-030-34751-2 © Springer Nature Switzerland AG 2020 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors, and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, expressed or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. This Springer imprint is published by the registered company Springer Nature Switzerland AG The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland
Foreword
When I first heard Drs. Denney-Koelsch and Côté-Arsenault in 2015 present data from interviewing parents who had experienced carrying a fetus with a lethal diagnosis, I knew the field of perinatal palliative care was entering a new phase. For the prior two decades, a variety of practitioners had been quietly supporting families who learned their fetus had a life-limiting condition. Hospice nurses, obstetricians, neonatologists, palliative care doctors, social workers, and others were all working at a grassroots level trying to do better for these grieving families. Sometimes, they worked in teams, but often, they practiced alone. All were operating from first principles – bring compassion and the ideals of palliative care into the perinatal space. No one knew for sure if their approach would ease the grief families were experiencing, but it was clear there was a need to do better. Erin Denney-Koelsch and Denise Côté-Arsenault had captured something fundamental. A major driver of decision-making was a desire to avoid regret. For me, it was a “eureka moment.” Families were in fact struggling with the challenges we thought they were. It was validating to
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