Community-Engaged Research with Vietnamese Americans to Pilot-Test a Dementia Caregiver Intervention
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Community-Engaged Research with Vietnamese Americans to Pilot-Test a Dementia Caregiver Intervention Oanh L. Meyer 1,2 & Mengxue Sun 3 & Thuy Do 4 & Janis N. Ho 5 & Bao-Tran Dinh 3 & Sherry Nguyen 3 & Ladson Hinton 6
# Springer Science+Business Media, LLC, part of Springer Nature 2020
Abstract
Caring for a family member with Alzheimer’s disease (AD) or a related dementia is stressful, and this may especially be the case for racial/ethnic minority caregivers. This study examined the feasibility and acceptability of a pilot intervention for Vietnamese American dementia caregivers. A secondary, exploratory aim was to examine postintervention effects on AD knowledge and psychosocial outcomes. Of the 87 individuals contacted, 32 met inclusion criteria. Of this number, 14 enrolled in the study with 11 caregivers completing the intervention, and 10 of the 11 completing 3-month follow-up data. Caregivers provided positive feedback on the intervention and had higher scores on AD knowledge and self-efficacy in seeking support services post-intervention, with the effect on self-efficacy maintained at 3-month follow-up. Recruitment for the intervention was difficult; however, once caregivers came to the first session, they were engaged and found the classes informative. Recommendations for a future intervention are discussed. Keywords Alzheimer’s disease . Diversity . Disparities . Culture . Ethnicity
* Oanh L. Meyer [email protected]
1
Department of Neurology, University of California, Davis School of Medicine, Sacramento, CA 95817, USA
2
University of California, Davis School of Medicine, Alzheimer’s Disease Research Center, 4860 Y Street, Sacramento, CA 95817, USA
3
University of California, Davis, Davis, CA 95616, USA
4
Asian Resources Inc., Sacramento, CA 95824, USA
5
Touro University, Vallejo, CA 94592, USA
6
Department of Psychiatry and Behavioral Sciences, University of California, Davis School of Medicine, Sacramento, CA 95817, USA
Journal of Cross-Cultural Gerontology
Introduction An estimated 34.2 million adults in the U.S. provide unpaid care for a family member or other loved one (National Alliance for Caregiving 2009). As the older adult population in the U.S. continues to grow in size and longevity, the likelihood that more adults will be caring for a family member with dementia or Alzheimer’s disease (AD) increases (Fact Sheet 2012). Dementia caregiving is stressful, as caregivers are more likely to experience anxiety, depression, and to report poorer quality of life and lower levels of life satisfaction (Chan 2010; Cooper et al. 2008; Schulz et al. 1997). They are also more vulnerable to mental health problems and accelerated physical decline. The experiences of ethnic minority caregivers may be even more challenging because of the existing health and healthcare disparities that exist for these groups (Pinquart and Sorensen 2005). Asian Americans are the fastest growing racial minority group in the U.S. today (Pew Research Center 2012). In the U.S., Vietnamese are the fourth largest Asian
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