Imaging-based patient-reported outcomes (PROs) database: How we do it
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REVIEW ARTICLE
Imaging-based patient-reported outcomes (PROs) database: How we do it Soterios Gyftopoulos 1,2 & Adam Jacobs 1 & Mohammad Samim 1 Received: 27 July 2020 / Revised: 5 September 2020 / Accepted: 8 September 2020 # The Author(s) 2020
Abstract Patient-reported outcomes (PROs) provide an essential understanding of the impact a condition or treatment has on a patient, while complementing other, more traditional outcomes information like survival and time to symptom resolution. PROs have become increasingly important in medicine with the push toward patient-centered care. The creation of a PROs database within an institution or practice provides a way to collect, understand, and use this kind of patient feedback to inform quality improvement and develop the evidence base for medical decision-making and on a larger scale could potentially help determine national standards of care and treatment guidelines. This paper provides a first-hand account of our experience setting up an imagingbased PROs database at our institution and is organized into steps the reader can follow for creating a PROs database of their own. Given the limited use of PROs within both diagnostic and interventional radiology, we hope our paper stimulates a new interest among radiologists who may have never considered outcomes work in the past. Keywords Anterior shoulder instability . Patient-reported outcomes . PROMs . Outcomes research . Radiology
Introduction Traditionally, radiology outcomes have consisted of measures of accuracy, image quality, and turnaround times. With medicine’s increasing push toward patient-centered care, collecting, understanding, and using patient feedback to improve management are becoming a top priority. A patientreported outcome (PRO) is an observation that a patient provides about an aspect of their health state without interpretation by a medical professional [1]. PROs provide an understanding of the impact that a condition or treatment has on a patient’s life and their activities. PROs complement other outcome information, such as patient survival and time to symptom resolution, which have classically been used to assess a condition’s or treatment’s effect on a patient’s life [1–3]. A patient-reported outcome measure (PROM) is a tool used to collect and measure PROs [1]. They are typically created in
* Adam Jacobs [email protected] 1
Department of Radiology, NYU Langone Health, 660 First Avenue, New York, NY 10016, USA
2
Department of Orthopedic Surgery, NYU Langone Health, 301 East 17th Street, New York, NY 10003, USA
survey format and filled out by the patient directly [1]. PROMs vary in scope, from general to disease-specific and, in terms of the types of data they collect, from information on the psychological impact of a disease to a condition’s physical symptoms and their impact on a patient’s daily life [2, 4]. The use of PROs in radiology as they relate to diagnostic imaging and image-guided interventions is lacking [5]. For diagnostic imaging, it can be difficult to measure an ima
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