Investigation of the relationship between disease severity, caregiver burden and emotional expression in caregivers of c
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ORIGINAL ARTICLE
Investigation of the relationship between disease severity, caregiver burden and emotional expression in caregivers of children with cerebral palsy Fatih Yığman 1
&
Zeynep Aykın Yığman 2 & Ece Ünlü Akyüz 3
Received: 19 December 2019 / Accepted: 11 March 2020 # Royal Academy of Medicine in Ireland 2020
Abstract Purpose The aim of this study was to investigate the relation between the physical problems of children with CP and caregiving burden and the emotional expression characteristics of caregivers. Methods The study included 144 caregivers of child with cerebral palsy and Zarit Burden Interview (ZBI) and Expressed Emotion Scale (EES) will be applied to the caregivers who will participate in the study. Disease severity of children with cerebral palsy will be evaluated by the Gross Motor Function Classification System (GMFCS) and Manual Ability Classification System (MACS) in children with cerebral palsy. Communication Function Classification System (CFCS) will be used to examine the communication of children with their families. Results Accordingly, a positive, statistically significant, moderate correlation was found between the GMFCS, MACS, and CFCS scores and ZBI scores in patients with cerebral palsy (r ~ 0.50; p < 0.01). In this study, a positive, statistically significant but weak correlation was found between GMFCS, MACS, and CFCS scores and EES scores in patients with cerebral palsy (r ~ 0.30; p < 0.01). A statistically significant, moderate correlation was found between ZBI and EES (r ~ 0.50; p < 0.01). Conclusion According to the results of our study, as motor skills and communication skills decrease, especially the burden of caregivers increases and the family’s emotional expression processes are related to these variables. We think that in the long-term follow-up of children with CP, it may be useful to provide appropriate psychiatric support by evaluating caregivers appropriately. Keywords Caregiver burden . Cerebral palsy . Disability . Expressed emotion
Introduction The World Health Organization reports that there are a total of 650 million disabled individuals in the world, of which 200 million are children [1]. Cerebral palsy is defined as a group of disorders that occur as a result of permanent, nonprogressive damage in the developing fetal or infant brain,
* Fatih Yığman [email protected] 1
Dışkapı Yıldırım Beyazıt Research and Training Hospital, Psychiatry Clinic, University of Health Sciences, Ankara, Turkey
2
Polatlı Duatepe State Hospital, Physical Medicine and Rehabilitation Clinic, Ankara, Turkey
3
Dışkapı Yıldırım Beyazıt Research and Training Hospital, Physical Medicine and Rehabilitation Clinic, University of Health Sciences, Ankara, Turkey
causing movement and posture disorder and limited activity. It often affects sensation, perception, cognitive status, communication, and behavior. Further, it is accompanied with epilepsy and secondary musculoskeletal problems. Cerebral palsy (CP) is a description of a combination of symptoms that indicate chronic, non
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