Patient engagement in a Canadian consensus forum for heart donation after circulatory determination of death
- PDF / 350,658 Bytes
- 11 Pages / 595.276 x 790.866 pts Page_size
- 45 Downloads / 191 Views
REPORTS OF ORIGINAL INVESTIGATIONS
Patient engagement in a Canadian consensus forum for heart donation after circulatory determination of death Implication des patients dans un forum de consensus canadien pour le don du cœur apre`s un de´ce`s circulatoire . Amanda van Beinum, MSc . Laura Hornby, MSc . Andrew Healey, MD . Sylvain Be´dard . Heather Berrigan . Diana Brodrecht . Lindsay C. Wilson, MHA . Thomas Shing . Jonathan Towers . Everad Tilokee . Clay Gillrie, MSN Sam D. Shemie, MD Received: 11 February 2020 / Revised: 30 May 2020 / Accepted: 7 June 2020 The Author(s) 2020
Abstract Purpose Heart donation and transplantation following circulatory determination of death has yet to be performed in Canada. A consensus forum was held to provide expert guidance to inform policy with a comprehensive patient partner strategy. This paper describes the process used to create fulsome patient partner engagement resulting in mutually beneficial policy development in this complex area. Methods A wide-ranging process for involving patient partners in this area included pre-meeting education, inmeeting expert support, full participation and permission Electronic supplementary material The online version of this article (https://doi.org/10.1007/s12630-020-01808-z) contains supplementary material, which is available to authorized users. A. Healey, MD (&) Division of Emergency Medicine, Department of Medicine, McMaster University, Hamilton, ON, Canada e-mail: [email protected]
to step back if desired, and post-meeting debriefing. Following the meeting, a questionnaire was used to guide a debrief discussion with patient partners and steering committee members who co-authored this paper. Results Five key themes arose that echoed the sentiments and contributions made by patient partners, including: 1) a strong desire to improve the system, 2) gratitude and honour, 3) expert support and process, 4) simplification of complex concepts, and 5) mutual benefit expressed by patient partners and healthcare professionals. Conclusion Despite the complexity of the content and the emotionally sensitive nature of discussions around deceased organ donation, a well-planned strategy to involve patient partners is important, impactful, and central to the process. This suggests a broad interprofessional audience can engage with properly L. C. Wilson, MHA C. Gillrie, MSN E. Tilokee Canadian Blood Services, Ottawa, ON, Canada S. Be´dard Montreal, QC, Canada
Trillium Gift of Life Network, Toronto, ON, Canada A. van Beinum, MSc Department of Sociology & Anthropology, Carleton University, Ottawa, ON, Canada Children’s Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada L. Hornby, MSc Children’s Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada Canadian Blood Services, Ottawa, ON, Canada
H. Berrigan J. Towers Halifax, NS, Canada D. Brodrecht Kitchener, ON, Canada T. Shing Hertfordshire, England, UK S. D. Shemie, MD Canadian Blood Services, Ottawa, ON, Canada Critical Care, Montreal Children’s Hospital, McGill Un
Data Loading...
