Personal and Network-Related Factors Associated to Diagnosis Disclosure Reactions for Children and Adolescents Living wi
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ORIGINAL PAPER
Personal and Network‑Related Factors Associated to Diagnosis Disclosure Reactions for Children and Adolescents Living with HIV Luís Fernando Barreto Filho1,6 · Cristina Barroso Hofer1 · Elizabeth Stankiewicz Machado2 · Thalita Fernandes de Abreu2 · Ana Cristina Cisne Frota2 · Ricardo Hugo de Oliveira2 · Olivier Robineau3 · Gisela Cordeiro Pereira Cardoso4 · André Reynaldo Santos Périssé4,5
© Springer Science+Business Media, LLC, part of Springer Nature 2020
Abstract The process of human immunodeficiency virus (HIV) diagnosis disclosure for vertically infected young people living with HIV has proven decisive for acceptance/adherence to treatment. Herein, we present a cross-sectional study aiming at evaluating how individual and network related variables are associated with reactions to HIV disclosure among them. We used the egocentric approach with a structured questionnaire applied to individuals aged 15–25 years in an HIV referral center in Rio de Janeiro, Brazil. Outcome variable referred to adoption or not of risk behavior after diagnostic disclosure, was classified as “good”/“bad” reactions. Results showed that, of the 80 study participants, 25% reported a “bad reaction” to diagnostic disclosure, an outcome that was more common for patients with at least one friend in their social support network (OR 4.81; 95%CI [1.05–22.07]). In conclusion, a “bad reaction” to HIV serological disclosure may be associated with inadequate structure of the individual’s social support network. Keywords HIV · Social support · Diagnostic disclosure · Adolescents/young people · Family/friends Resumen El proceso de divulgación del diagnóstico del virus de inmunodeficiencia humana (VIH) es decisivo para la aceptación/ adhesión a tratamiento de los jóvenes infectados verticalmente que viven con VIH. Presentamos un estudio transversal con el objetivo de evaluar cómo variables individuales y de red están asociadas con reacciones a la divulgación del VIH entre ellos. Utilizamos el enfoque egocéntrico por medio de un cuestionario estructurado aplicado a personas de 15-25 años en un Centro de Referencia para VIH en Río de Janeiro, Brasil. La variable de resultado se refiere a la adopción o no de comportamiento de riesgo después de la divulgación del diagnóstico, clasificadas como reacciones "buena"/"mala". Los resultados mostraron que, de los 80 participantes del estudio, el 25% reportó una "mala reacción" a la divulgación diagnóstica. Este resultado fue más común en pacientes con al menos un amigo en su red de apoyo social (OR:4.81; IC95% [1.05-22.07]).
Disclaimers All the authors declare that the opinions expressed in this article are their own and do not reflect an official position of the institution where the research was conducted. * Luís Fernando Barreto Filho [email protected] 1
Department of Preventive Medicine, School of Medicine, Federal University of Rio de Janeiro, Rio de Janeiro, Brazil
HIV Clinic, Pediatric Institute of Federal University of Rio de Janeiro (IPPMG), Rio de Janeiro, Brazil
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