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Patient Involvement in Health Technology Assessment
Patient Involvement in Health Technology Assessment
Karen M. Facey • Helle Ploug Hansen Ann N.V. Single Editors
Patient Involvement in Health Technology Assessment
Editors Karen M. Facey No. 9 Bioquarter Usher Institute of Population Health Sciences and Informatics University of Edinburgh Edinburgh United Kingdom
Ann N.V. Single Patient and Citizen Involvement Interest HTAi Ashgrove Queensland Australia
Helle Ploug Hansen Department of Public Health, Research Unit of General Practice University of Southern Denmark Institute of Public Health Odense Denmark
ISBN 978-981-10-4067-2 ISBN 978-981-10-4068-9 (eBook) DOI 10.1007/978-981-10-4068-9 Library of Congress Control Number: 2017941287 © Springer Nature Singapore Pte Ltd. 2017 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. Printed on acid-free paper This Adis imprint is published by Springer Nature The registered company is Springer Nature Singapore Pte Ltd. The registered company address is: 152 Beach Road, #21-01/04 Gateway East, Singapore 189721, Singapore
To Philip, Carl and Glenn for supporting us throughout this book’s development
Foreword I
If you’re not involving patients, you’re not doing HTA! It’s that simple. Patient involvement improves the quality, relevance, and value of HTA. It is difficult to conceive of health technology assessment being conducted in a meaningful way in the twenty-first century without the involvement of patients. As the President and CEO of a Health Technology Assessment agency, and as Chair of the International Network of Agencies for Health Technology Assessment (INAHTA), I am a strong advocate for patient involvement in HTA. Patient Involvement in HTA explores the rationales underlying patient involvement, provides research methodologies to produce patient-based evidence, describes how patient involvem
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