Care burden and quality of life in mothers of children with type 1 diabetes mellitus
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ORIGINAL ARTICLE
Care burden and quality of life in mothers of children with type 1 diabetes mellitus Dilara Keklik 1 & Meral Bayat 2 & Öznur Başdaş 2 Received: 27 December 2018 / Accepted: 17 January 2020 # Research Society for Study of Diabetes in India 2020
Abstract Purpose This was a descriptive study to determine the care burden and quality of life of mothers of children with type 1 diabetes mellitus (T1DM) and the correlation between these two variables. Methods The sample consisted of 106 mothers of children with T1DM. Data were collected using a descriptive questionnaire, the Zarit Caregiver Burden Interview and WHOQOL-BREF quality of life scale, and were evaluated with the Mann-Whitney U test, Student’s t test, ANOVA, Kruskal-Wallis test and Spearman’s correlations. Results Mothers had a moderate burden level (34.95 ± 12.48) with a statistically significant difference between income state and care burden (p < 0.05). Environment-related quality of life was related to income and physical quality of life was related to the time of diagnosis (p < 0.05). Care burden was negatively correlated with some aspects of quality of life. These results imply that mothers of children with T1DM have a moderate care burden and that their care burden has a negative impact on their quality of life. Conclusions It may be provided to support the systems and suggested applying experimental studies due to decreasing care burden and increasing the quality of life of mothers who have children with T1DM in terms of gaining better care for children with T1DM. Keywords Type 1 diabetes mellitus . Child . Mother . Care burden . Quality of life
Introduction Type 1 diabetes mellitus (T1DM) is increasing in prevalence worldwide. It is a chronic disease with biological, psychological and social effects and affects the families of children with T1DM as well as the children themselves [1]. Management of T1DM is a complicated and challenging process involving regulation of diet, exercise, insulin injections and monitoring of blood glucose levels using a glucometer/insulin pump [2]. It is known that caregivers of children with T1DM have problems, such as the change in routine that a diagnosis entails, the extra cost of drugs and medical equipment, economic distress, devoting more time for caring of children, poor sleep,
* Dilara Keklik [email protected] 1
Child Health and Diseases Nursing Department, Faculty of Health Sciences, Çukurova University, Adana, Turkey
2
Child Health and Diseases Nursing Department, Faculty of Health Sciences, Erciyes University, Kayseri, Turkey
dealing with the stigma of having a child with T1DM, increased responsibilities, the extra effort required at home to prevent the child’s symptoms from deteriorating and psychological tension (stress, suppression, anxiety, sadness and desperation) [3, 4]. The World Health Organization (WHO)’s report on diabetes noted that diabetes and its complications place a significant economic burden on individuals diagnosed with diabetes and their family because of health care ex
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