Health-related quality of life of Pakistani adolescents with type 1 diabetes and their parents
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ORIGINAL ARTICLE
Health-related quality of life of Pakistani adolescents with type 1 diabetes and their parents Saima Askari 1 Abdul Basit 5
&
Nazish Imran 2 & Asher Fawwad 1,3
&
Anum Butt 4
&
Musarrat Riaz 1
&
Raheela Naseem 4
&
Received: 3 May 2019 / Accepted: 17 January 2020 # Research Society for Study of Diabetes in India 2020
Abstract Objective To assess the health-related quality of life of Pakistani adolescents with type 1 diabetes mellitus and their parents. Methodology This cross-sectional study of adolescents with T1DM and their parents was conducted at Baqai Institute of Diabetology and Endocrinology, a tertiary care hospital, Karachi Pakistan from April 2017 to September 2018. Diabetes Quality of Life for Youths (DQOLY) questionnaire (assess possible problems in six dimensions of impact) and WHO QOLBREF instrument was used to assess quality of life of adolescents with type 1 diabetes and their parents respectively. The data was entered and analyzed using IBM Statistical Package for Social Sciences version 20. Results Adolescents with T1DM had adverse impact on their quality of life (QOL); overall QOL score was found 20.76 ± 0.83, the maximally reported adverse impact was related to symptoms of diabetes 24.35 ± 1.92 and impact of treatment 24.59 ± 2.12. Females had more adverse impact on QOL score, i.e. 22.49 ± 1.2 (p value = 0.015). Adverse effect on QOL score is strongly correlated with increasing age (p value = 0.006). Overall QOL score of parents/care takers was 56.3 ± 0.98. The worst overall QOL score was noted to be of care takers 53.75 ± 3.4 followed by mothers 54.52 ± 1.25 and fathers 60.56 ± 1.61 respectively (p value = 0.015); the environment domain was associated with statistically significance adverse impact on QOL of mothers (p value = 0.008). Conclusion It is imperative for health care professionals to be aware of the effect of diabetes on QOL as timely screening is important for better health care outcomes. Keywords Quality of life . Adolescent with T1DM . Parents
Abbreviations T1DM NDSP HRQOL
type 1 diabetes mellitus National Diabetes Survey of Pakistan health-related quality of life
DQOLY WHO QOL-BREF
* Asher Fawwad [email protected]
Diabetes Quality of Life for Youths World Health Organization Quality of Life Instrument
Abdul Basit [email protected]
Saima Askari [email protected]
1
Department of Medicine, Baqai Institute of Diabetology and Endocrinology, Baqai Medical University, Karachi, Pakistan
Nazish Imran [email protected]
2
Department of Child and Family, King Edward Medical University, Lahore, Pakistan
Anum Butt [email protected]
3
Department of Biochemistry, Baqai Medical University, Karachi, Pakistan
Musarrat Riaz [email protected]
4
Research Department, Baqai Institute of Diabetology and Endocrinology, Baqai Medical University, Karachi, Pakistan
Raheela Naseem [email protected]
5
Department of Medicine, Baqai Institute of Diabetology and Endocrinology, Baqai Medical University, Karachi, Pakistan
Int J Diabetes D
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