Development and Psychometric Properties of a New Questionnaire to Assess Mental Health and Concerning Behaviors in Child
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ORIGINAL PAPER
Development and Psychometric Properties of a New Questionnaire to Assess Mental Health and Concerning Behaviors in Children and Young People with Autism Spectrum Disorder (ASD): The Assessment of Concerning Behavior (ACB) Scale Joanne Tarver1,2 · Silia Vitoratou3 · Mathilde Mastroianni1,4 · Natalie Heaney1 · Eleanor Bennett1 · Felicity Gibbons1 · Federico Fiori1,4,5 · Michael Absoud6,7 · Lakshmi Ramasubramanian8 · Emily Simonoff1 · Paramala Santosh1,4,5 Accepted: 3 October 2020 © The Author(s) 2020
Abstract Although 70% of autistic children and young people meet criteria for co-occurring psychiatric conditions, there are few screening measures specifically for autistic individuals. We describe the development and validation of the Assessment of Concerning Behavior (ACB), an instrument co-developed with the autistic community to assess mental health and problematic/risky behaviors. Items include descriptions to facilitate symptom recognition by autistic people, and carers/professionals. The ACB was completed by 255 parents, 149 autistic children and young people and 30 teachers. Internal consistency, stability and validity was assessed. The ACB parent-version fit a two-factor model (internalizing and externalizing problems) and showed adequate test–retest reliability, internal consistency and construct validity. The ACB is a promising new measure for research and clinical use in autism. Keywords Autism spectrum disorder (ASD) · Emotional and behavioral problems · Risk · Instrument development and validation
Introduction
Electronic supplementary material The online version of this article (https://doi.org/10.1007/s10803-020-04748-1) contains supplementary material, which is available to authorized users. * Paramala Santosh [email protected] 1
Department of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology & Neuroscience, King’s College London, London, UK
2
Department of Psychology, School of Life and Health Sciences, Aston University, Birmingham, UK
3
Department of Biostatistics and Health Informatics, Psychometrics and Measurement Lab, Institute of Psychiatry, Psychology and Neuroscience, King’s College London, De Crespigny Park, London, UK
4
Centre for Interventional Paediatric Psychopharmacology and Rare Diseases, South London and Maudsley NHS Foundation Trust, London, UK
Autism Spectrum Disorder (ASD) is a neurodevelopmental condition characterized by differences in social communication skills and the presence of restrictive and repetitive behaviors and sensory processing difficulties (APA 2013). 5
HealthTracker Ltd, Gillingham, Kent, UK
6
Children’s Neurosciences, Evelina London Children’ Hospital, St Thomas’ Hospital, King’s Health Partners Academic Health Science Centre, London, UK
7
Department of Women and Children’s Health, Faculty of Life Sciences and Medicine, School of Life Course Sciences, King’s College London, London, UK
8
Child and Adolescent Mental Health Services, Alder Hey Children’s NHS Foundat
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